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I'm a 31 yrs old female, was diagnosed last january with chiari malformation I then I had my decompression surgery March 2014 but within 2 weeks after the discharge I had aseptic meningitis, CSF leaking & eventually thrombosis due to the central PICC line. I was told from the begining that the symptoms wont resolve totally but hopefully an 80% improvement. I started last Novomber to have attacks of headaches, neck pain, earache, dizziness & numbness in my upper limbs. I was terified I was relapsing this soon; so I went to my neurosurgeon where I did an MRI that resolved a major improvement though I still have some fluids in the surgical bed. My neurosurgeon found that he had nothing to do with my new symptoms so referred me to ENT who found nothing wrong with my inner ears, so again I was referred to the physiotherapy as those symptoms can be resulting from cervicogenic headache. The thing is the physiotherapist told me she never had have came across a case like me before & whenever I'm trying to contact my surgeon he is not answering me anymore which really bothers me a lot.
Have anyone came across symptoms like what I'm experincing & if so anyone cares to advice me what might be next?!
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