Posted , 7 users are following.
Hi I have fibro as well as spinal ristrictions and hip problems but over the past week iv been getting a hot burning feel on my legs like someone is burning me with a lighter or something it Comes and goes does anyone else get this??
0 likes, 15 replies
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sukes sarapainfree
Posted
I don't experience burning quite like you describe yours, but my legs feel hot and very achy most of the time, although they are not hot when you touch them, it's a strange sensation really. Do yours hurt in patches or all over?
Stanley1869 sukes
Posted
ihavenonickname sarapainfree
Posted
Where will determine the location of the compression.
Also, cold, tingling, pins, needles, numbness
bronwyn97278 ihavenonickname
Posted
Hi ihavenonickname; am sorry, but I think if you ask Most Fibro sufferers, you will find that we all get this "burning sensation". Yes, it is related to our nerves, but not to "compression"; but to the Over- sensitivity of these nerves. This was my first symptom, and the reason I asked to speak to one of our specialists. To me it occurs over most parts of my body, especially my muscles over scapulars, and my shin muscles. It gets a LOT worse when stressed or when weather becomes too hot. The only med/treatment that works for me is the Amitriptylline. Bron
ihavenonickname bronwyn97278
Posted
Yes, stress makes matters worse for me...I live in a constant 68 F degrees. I take Lyrica (pregabalin) to quiet my nerves. Amitriptyline caused urinary bladder failure....delighted to hear it works so well for you.
kind regards
bronwyn97278 ihavenonickname
Posted
Yes, I, too have had this condition for over 25 years, and didn't start my Amitriptylline until about 10 years ago. I also agree that there a "side effect for some" of urinary retention.............however I always prevent this by increasing my water intake, and use an "urine alkalizer" to stop any infections. This may be necessary, also, if others do want to trial this medication.
When I trialed Lyrica, it did Nothing for me....the pain was still there, and therefore, became more of a misery. Thankyou...........Bron
ihavenonickname bronwyn97278
Posted
I am also glad the Lyrica helps me. Interesting how we are all the same yet different
sarapainfree
Posted
Thanks for reply my burning doesn't hurt it's just on my thigh's it comes and goes this is a very new symptom
Princessnoo sarapainfree
Posted
I get the burning sensation down the fronts of my legs along the shin bone. My knees also get hot for no reason although this isn't painful more uncomfortable. That said I am three weeks into an infusion of Lidocaine. I am almost pain free for the first time in ten years.
I have completely stopped taking tramadol and am starting to enjoy my life again.
I thoroughly recommend the lidocaine infusion.
Amitryptyline, pregabalin and gabapentine never worked for me.
bronwyn97278 Princessnoo
Posted
sarapainfree
Posted
I have been given steroid injections but they never worked for. me so now I am just on gapapentin they make. me. drowsy so can only take these at nite but yet.I struggle alday with no pain relief as I have children I can't take anything that will.make. me. sleep. in the day time. and I can't have anything that Contins codeine as it makes. me. ill
Princessnoo sarapainfree
Posted
Hi Sarapainfree
Gabapentin made me very ill and then worked only for a few weeks.
It isn't a steroid injection I had but lidocaine which is an anaesthetic. It worked for me in days.
I was taking between 4-6 tramadol plus paracetamol a day. I'm now off the tramadol,which I did myself though a little fast and suffered withdrawal. I am now on 4-6 paracetamol a day only.
For the first time in years I have been able to move the furniture around in my lounge to accommodate the Christmas Tree. My husband couldn't believe I did it on my own. I am not saying ouch every five seconds.
Lidocaine has given me a whole new lease of life without any side effects. It can last for up to 12 months but for most it is 4 and they stretch it out to six before a second one.
I will happily take 8/12 months a year pain free.
It's quite a new treatment my GP said so your GP may not know about it. Insist on a referral to a pain clinic.
I'm lucky I have a fantastic GP who always listens to me and takes me seriously. Picks up on my mood when it's low (I have depression too) and in the summer signed me off work for three weeks to rest, with an offer to refer me to pain clinic and telling me about the lidocaine option, as I was exhausted and not sleeping. Waking up every time I turned over in pain.
Take Care and good luck. That you can find something that works for you.
grandmaDylan Princessnoo
Posted
How does the lidocaine infusion work? I'm in pain in several parts of my body like everyone else with fibro so I can't understand how it works, sorry if this sounds like a stupid question! Is it done on the nhs? The thought of being almost pain free sounds wonderful. The only medication that made almost all of my apin go was high dose steroids which bring their own side effects and I now wish I'd never been prescribed them.
Princessnoo grandmaDylan
Posted
Hi grandmaDylan
Lidocaine is an anaestheticand the lidocaine is administered via an intravenous drip. The consultant explained that it attaches to sodium in the cells and therefore disrupts the pain signals to the brain. I think gabapentin and pregabalin work with calcium in the cells to disrupt the pain signals. It all got a bit technical for me with my O'Level Chemistry but I think I've got that right.
I had the procedure through the NHS but at a private hospital in Reading. The whole process took 1 hour then I was given a lovely sandwich and hot drink and allowed to leave and advised to rest for the rest of the day.
During the procedure your heart rate and pulse are monitored as the heart rate can drop. I had no problems at all with a perfect blood pressure reading and I have high blood pressure, for which o am medicated.
I did feel very very aches all over the next day as if I had been run over by a steam roller/flu like symptoms but since then I have continued to improve.
The flu flu like symptoms may have been the reduction in tramadol and probably not the infusion as there aren't suppose to be those sort of effects.
I would recommend the lidocaine infusion and I wish it had been offered to me years ago. I think it's been around since 2004 for this type of pain but it may have been trials only as my GP said it is a new procedure. If you search the Internet for Lidocaine infusion on the NHS there are several hits.
I hope you are given this opportunity as it has changed my life in a matter of weeks.
grandmaDylan Princessnoo
Posted
Thanks for your reply. I will ask my gp about this and hope that he or she will refer me for it. I can't imagine being in less pain, it sounds wonderful.