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now low vitamim D on tablets in remission protein lowest it been for some time now 6 months still carrying some weight looking at ways to try to loose it.  The only thing I can not get rid of is the pain in my hands really hurts and both thumbs hard to use, anyone know why is possible fluid in the tisue!!!!!

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3 Replies

  • Posted

    Dear Susan42255,

                                  I had exactly the same symptoms. The specialist put it down to large doses of Prednisolone. (80mg?) Couldn't use my cutlery at all, embarrassing to clear the plate with my fingers ! I'm on 10mg now and this will be reduced over the next few weeks . The pain and cramp ended when the dose was reduced. But this was probably better than the illness and dialysis!

    I became ill in July, still have small amounts of protein in sample. Last time nothing.

                              Hang on in there. Regards , Eric

    • Posted

      Thanks the only problem is I came of prednisolone at least 5 months ago and the pain started to get worse after I came off 
  • Posted

    DearSusan42245,

                                  Sorry I couldn't help. Sometimes these conditions can take years but people do recover. 

    Back to my painting ! 

                                           Regards, Eric

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