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New theory cut it off

Posted , 5 users are following.

athena93317
athena93317

So when I had my biopsy done the doctor said it shouldn't grow back in that spot so I asked why don't they cut it all off he said they only do it if they have to because it's a delicate area

Well I am having a flare up right now and it still hasn't come back in the spot that they biopsied so do you think if you went to a vaginal reconstructing doctor if he cut off parts of the skin that seemed affected it wouldn't come back at all I wouldn't care if it was an intensive surgery or if I lost some filling I would rather do that then be affected every time I eat something wrong or use a vibrator sorry if that's a little much but what are your thoughts

1 like, 14 replies

14 Replies

  • hanny32508
    hanny32508 athena93317

    Posted

    My thoughts:

    Personally I would be a bit careful with 'cutting' .  LS is always there.  Cutting is not curing.  I prefer more natural ways - baking soda baths, sea salt, diet. And more of the like.  That way it can fairly easily be controlled.   

  • christine94142
    christine94142 athena93317

    Posted

    hi it is still always there i have been told can can come back any time i dont think its a cure . and what if the whole area is affected thats hard to take 
  • Chrisy
    Chrisy athena93317

    Posted

    Hi,  I would be very careful before jumping into that approach.  I would certainly want to research this idea before I went for an operation like that.  It is not something you can reverse.  My experience has been that any trauma has caused a flare up but I have not had a biopsy down below so I can't coment on whether or not you would have any ls on the spot that is cut.
  • lizziewizzie
    lizziewizzie athena93317

    Posted

    hi athena,

    I really appreciate your question. When patients had biopsys in other places for tumours (to assess whether or nor the tumour was malignant - some can be benign and operate as a waste disposal mechanism gathering in all our toxins,  unwanted and negative material, with a view to 'shedding that load' eventually - if our body's excretory system is overloaded and malfunctioning - hence the fibrous shell often found around tumours which is to protect the rest of the body from harm )  I often asked why the whole affected area was not removed and be done with it. so i agree that for the patient a biopsy is often not very helpful....and you don't have to have one. Its your body!  But if there is  concern about a carcinoma then it would be prudent to know. What do you instinctively feel is going on?

    more to say but can i come back as its all about the cause i feel and best that you comment and describe what you think has caused this condition in you....since this may offer the best therapy going forward. The kind of reconstruction you are moving towards considering at the moment is most like so called 'stem cell therapy or surgery' but that also comes back as its the root cause we need to address...that mystic goal!!

    • hanny32508
      hanny32508 lizziewizzie

      Posted

      The root cause ... with many illnesses I find that the symptoms are treated but not the root cause. There are not the answers, I'm afraid. Appreciate you mention this.
    • athena93317
      athena93317 lizziewizzie

      Posted

      I did think it was a hormonal imbalance but now I'm not sure I would like to explore blood types though now I have found out that my mother and father were opposite blood types and so are my husband and I that's something to think about not sure when I developed it my first memory of it I was about 19 then got much worse after having my son
    • lizziewizzie
      lizziewizzie hanny32508

      Posted

      thanks hanny, i appreciate your appreciation!

      its good to talk about this...because even if we do not yet know the root cause...its an honest appraisal. So having confidence in our bodies and giving support to our systems so thay can re-ignite as it were - and start working properly again - might be a way to go.

      i'm uncomfortable about suppressing symptoms...difficult as they may be ....the body is clearly trying to tell us something.  i'd prefer to try to listen and to work it out. i've obviously made some major boobs in my life-style strategy...so i'm trying to look at what these wrong practices might have been. its sad that cereals have been so altered but eating these grains is no longer an intelligent option it seems to me. so i'm going for more veg ...maybe even veg flours?

    • lizziewizzie
      lizziewizzie athena93317

      Posted

      hormonal imbalance actually sounds like a fairly likely prospect....possibly together with other factors. I'm guessing its a deeply layered many aspected thing thats going on.

      I really like the way we are putting our heads together to think this  through. You mention blood types and I think this is brilliant thinking. I would like to anyalise it with you.

      i am o rhesus negative i had prior pregnancies before a live birth and on each occasion i received the vaccine to the rhesus factor. it drove home to me our human vulnerability and how 'in the wild'  i would not have survived. this crossing of blood types needs atention paid to it. i am deeply grateful to the medical profession for having worked this  out....so i was saved as it were....but maybe there is some 'intention' behind the original design ....which we are defying????????????

    • athena93317
      athena93317 lizziewizzie

      Posted

      That is exactly how I feel with my son I would not have been able to have him without medical help with the rhogam shot I received there had to be some side affects with that not necessarily the shot but making your body carry something it is trying to reject
  • lizziewizzie
    lizziewizzie athena93317

    Posted

    sorry athena..have just re-read and se that you've had the biopsy. how are you now?
    • athena93317
      athena93317 lizziewizzie

      Posted

      I'm the area that was biopsied it is fabulous the doctor was even shocked how well it healed no scarring or anything and it hasn't come back on that spot but all around it is affected the thick white patches are almost all gone besides my clitorus hood I'm having trouble with that but any stimulation down their makes it all itchy and swollen but still not the spot that was biopsied I am having aching pain down there right now not sure what that's about have you experienced any pain like that
    • lizziewizzie
      lizziewizzie athena93317

      Posted

      aching pain? as in with swelling?

      yes i have...i've been keeping a food diary and it defo relates to eating something allergenic.

      anyone else have experience of this?

      well you know what athena...i'm thinking you may be a candidate for a full vulvectomy and re-section. you are so positive about this and have loads of confidence and since this is so much mind over matter...and because you may have helped your body to shed something unwanted at the time of the biopsy ...perhaps extending the area of excision might be the right thing for you?

      anyway you clearly want to explore this further and there are other comments advising of caution which i understand but someone else in the group went for a similiar proceedure abroad...over there called 'stem cell therapy' .

      with your positive attitude confidence and persistence i see you going back to your GP and agitating for appropriate surgery. i see you persuading a consultant and getting what you want under the NHS ...afterall they carry out total genital reconstructions for gender re-assignments ...why should you not have this assistance? and perhaps pave the way for others?

      just keep a successful end result in your mind's eye and you will surely get there.

      xx

  • lizziewizzie
    lizziewizzie athena93317

    Posted

    hi athena

    i looked through the 'summary of monthly activity' which  i received (which was very helpful....the 'causes of LS' is also listed there....with prior talk about blood types in a humorus way. i never would have thought of this but am now fascinated and think you are on to something)

    i also checked back as to what 'getmeoutahere' had to say on stem cell surgery...which does not involve any excision as i was assuming, incorrectly,  but rather an injection only. you want to go further...rather as if you were having an excision for a carcinoma. here is what 'getmeoutofhere' says anyway:

    (about stem cell surgery) :

    "  it is a temporary way of protecting the skin tissue from antibodies by i jecting stem cells into the affected area, so for a time you are cured, until the skin starts to be attacked again. But, if you are injected on a regular basis, it would seem permanent, if you understand. The treatment is far too expensive, but like everything else, with time and demand, it will, or should get cheaper, be available on health insurance, or free on the NHS, that day will come, but how long will depend on how much of a stink we kick up."

    so various strategies for your consideration!!  xx

    • hanny32508
      hanny32508 lizziewizzie

      Posted

      Stem cell is okay.  Cutting is not.  I learned about a woman that had cutting done and can no longer participate in a normal manner in life.
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