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I am in Florida, USA. I am 48. I was diagnosed 3 weeks ago but the one thing I cannot seem to find is how do you know how severe it is?
Went doctor he told me hospital missed it 16 months ago on a CT scan and that it was not life threatening. Everything else I have learned has been here. Called doctor's office about the fatigue and nurse said I most likely have sleep apnea. Don't see doctor until December. Then I read here that fatigue is a common symptom. So why didn't doctor's office know this?? I am beginning to think I need to find a new one and I haven't even seen him twice.
Have so many questions but don't know who to ask and/or who to trust. How do you know if it is cystic fibrosis or non cystic fibrosis? Did they check babies 48 years ago? He didn't order any tests or another CT see if it was worse or same? So how do you know how to treat? Very depressing and frustrating.
Thanks for any input/help/advise/support!
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