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Hi all, 24 year old man started having some buttock and back pain in late September 2015 gradually getting worse for a couple of weeks dr’s and physio originally suspected a herniated disc (slipped disc) after mri in February turned out to be a rear form of spinal tumor called a clear cell meningioma! Had the tumor removed in March 2016 was doing great no back pain or sciatica had some loss of sensation in right side and some numbness but leg power was strong and walking was almost normal, after about 8 weeks pain returned so had a follow up scan to show tumor had reoccurred so radiotherapy was giving for 6 weeks and symptoms had eased and tumor had stopped growing! Now in January 2018 had some pain and trouble urinating went for an MRI and was told the tumor was growing again and I had CES so had tumor removed last week and pressure relieved from my nerves, I guess why I’m here is they have now told me I will self catheter for a couple of weeks and have no real control over bowels, penis is numb and it feels like the end of the world for a 24 year old man with a long term gf they told me that it might not be permanent but they need to be realistic and it could be I’m distraught
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