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New to CFS

Posted , 7 users are following.

cherie8218
cherie8218

Hi, I have been recently diagnosed with cfs. I have had this problem for almost a year now. I ended up in the pysch ward because I felt hopeless and useless and I wanted it all to end. Until recently they have had no answers for me. They checked evrything they possibly could physically and told me they couldnt find a cause. I kept reading about CFS but I didnt want to accept it. Now I came to terms with it and am doing my research and trying to find something that helps. Recently my doc has put me on Adderall. While it helps I dont want to depend on that for the rest of my life. Im looking into herbal and vitamens and things of that nature. I have a whole list (actually 20)  of things that could be helpful. I have to find something that works because like many of you I can function and I have a 6yr old..Hoping to get some insight and hope from you people that have had it longer. Sorry this was so long! neutral Cherie

1 like, 9 replies

9 Replies

  • syracuse
    syracuse cherie8218

    Posted

    Getting a diagnosis is a huge milestone. I was suffering for 3 years before I was eventually referred to a CFS specialist, got a diagnosis and started some treatment. Now you and your GP can focus on what is going to be helpful to enable you to cope as well as possible. Lots of people frown on cognitive behavious therapy but for me it was very helpful for identifying triggers which I could then avoid or prepare for or to learn to deal with. I now cope reasonably well although some of the medication that has been particulalrly helpful I have been taking for 12 years. Obviously I'd rather not - but experience has shown me that it makes the difference between incapacity and being able to get on with some things almost normally. Good luck!
  • jackie00198
    jackie00198 cherie8218

    Posted

    Cherie--I'm so sorry that you're having to deal with this terrible illness. The most helpful advice I can give you is to pace yourself and not try to push through the fatigue. That can make things a whole lot worse. You've had ME/CFS for a fairly short amount of time, so right now you're in a big window of opportunity for getting better. That's why it's so important that you don't push it. Also, it's important to deal with the emotional part of this illness, which often is depression and anxiety. I found daily meditation to be very helpful. It's great that you're reaching out to this forum. I'm sure you'll get a lot of support and information here. Oh, and another good source of information is the "solve me/cfs initiative" website.
  • GeorgiaS
    GeorgiaS cherie8218

    Posted

    A good place to start is with your diet, getting it as healthy as you can and cutting out harmful foods and drinks like caffeine, junk food, sugary foods etc. Herbs have improved a lot of my symptoms.
  • dawn94288
    dawn94288 cherie8218

    Posted

    I loved your question and hope to see a lot of ideas coming forth.  Many who suffer with M.E./CFS have at least a little bit of hypothyroidism.  My levels weren't low enough for prescription meds, but I was told by an alternative doctor to take "Thyroid 130" and this made the biggest difference for me.  However, I still struggle.  Soooooooo......The big new thing in the U.S.A. that has helped a lot of people and is being recommended by one of the foremost experts here on CFS and Fibromyalgia is  D-ribose. I am going to give it a try. 
    • dawn94288
      dawn94288 GeorgiaS

      Posted

      How interesting!  I"ll have to look Kelp tincture up.  I've never heard of it.
    • GeorgiaS
      GeorgiaS dawn94288

      Posted

      And I'll have to look up D-ribose because I haven't heard of that! Lol
  • dawn94288
    dawn94288 cherie8218

    Posted

    Cherie, Have you seen the herbs and such that Georgias has been mentioning on here?  Maybe they would be helpful to you?  They are under "I have a question about CFS" or close to that.
  • sueliz57
    sueliz57 cherie8218

    Posted

    I recommend D ribose, if I run out of it or stop taking it then I start going downhill quickly. My family was against me taking it at first saying if it's a sugar your body makes, you don't need supplements, but they have seen the difference it makes to me. And I stress to me, it may not be what your body needs.

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