New to ckd stage 3

Hi , thanks for responding . I find it really bewildering . I've had insomnia for about 3 monrhs too . Itchy skin , weight gain & wee loads . That might be diuretic but makes keeping hydrated a problem . HB level was spot on , not sure about iron though . I'm back at hospital August , I wish it was clearer and more information on symptoms and expectations .

I will ask about iron when I go . I eat veg and fruit daily so that must be a bonus , but then I read that some veg and fruit should be avoided . Minefield 😳

Many thanks

Debbie

Itching is one of the signs of high phosphate, ask what your levels are they can give you binders to eat with your food if it is high which will stop that.  No amount of cream or itching will get rid of the phosphate itch lol.  Fruit and veg is good but its common for our levels to drop no matter what we eat.  Avoiding stuff is a big no unless you are specifically told to do so by your dr.  You sound like you are referring to high potassium veg, thing is its not only in veg but you dont need to worry about this, if your potassium was high you would have been told and also told what to do about it.  If you lower your potassium and its in range you will put yourself in hospital that is why you should never change anything unless you are told to its dangerous.  Just avoid salt, low salt and ibuprofen, keep your BP in the limits even if that means controlling with meds and that is all you can do for now.  Ask if you can have access to patient view its brilliant.  It gives you your blood results, but also says what  the levels should be as a guide and gives info on what it means if they are higher or lower than what they should be.  If you are in the UK ask your dr and its free.  I love looking at mine! very interesting and useful.

Thanks Helen . I'm in Worcestershire so I'll request that.

Your right when the itch itches nothing helps it short of ice cubes to freeze it , it usually my shins . I will reduce salt , I haven't used brufen and a few others since gp said no about two yrs ago . I manage on co codomol and very rarely tramadol . My bp is good now , two meds and regular exercise and it's a healthy 130/60. At most . I'll carry on eating as I do then . I have cut out a lot of salt and fat and very rarely have processed foods . I like the sound of being able yo keep track of blood results etc . My blood sugars went up to 7.9 but HB was 30 so def not diabetic thankfully . Thanks so much for all the suggestions and info . Anything is help full as there doesn't seem to be a pack of info given .

Best wishes

Debbie

Hi , thanks for responding , I'm stage 3 . It's so bewildering . I do all the right things health wise . So consultant says he's not worried . But he was wandering why I had it as it's not a result of anything like diabetes or lupus . He has suggested a biopsy in future maybe . I was hoping for an info package of something after being diagnosed , wasn't prepared for diagnosis so don't ask many questions . Saw him again after to Chang bp tablets and going back in August. I think a lot had changed in last 3 months . Nausea , back pain , insomnia , fatigue Muscle pains , muscle twitches . I'm going I learn to manage it better . In time

Debbie 😊

Hi Charlie , could you send link via private message , that would be useful to me I think. It's good your there to offer support and are learning about it yourself . He's a lucky dad 😊

. It was removed off here and suggested it be sent by personal message .thanks again

Debbie