New to CS and new to forum

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Hi all

i have this week finally been diagnosed with CS with mild stenosis! I started with headaches approx three years ago diagnosed as tension headaches. Problem was no pain killers worked and I suffer for upto 5 days at a time. I tried paracetamol, paracetamol with codeine and ibuprofen and nothing helps with the pain.

i have very few other symptoms, bit of shoulder ache and sometimes a weakness in my arm.

Over the past three years I have developed a number of coping mechanisms as I have learnt what causes the bad heads and how to get rid of them. I now have a headache every 6/8 weeks instead of every week.

when I have a headache it can be relieved by a very hot shower or hot pads placed on my shoulder if that does not work I have learnt how to self massage my neck.

i got the diagnosis by chance as I happened to mention the headaches to the orthopaedic surgeon treating my sciatica, I also have two prolapsed lumber discs! He immediately ordered X-rays which confirmed the diagnosis.

on researching the condition I discovered the forum. It is always comforting to read stories of fellow sufferers, I am no longer alone!

what would be useful if anyone can share any meds or methods they have of coping with the headaches.

sue

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  • Posted

    Hi,

    no you are not alone, the headaches I think stem from shoulder and neck,today the bottom of my back has gone which I have often.I find ice packs more than the heat under osteopath and next week having physio all costs money the NHS physio looked at me and said cannot do anything.If you want to pm me feel free.

    joan

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    • Posted

      Hi joan

      thanks for your reply. I have lived in Cyprus for the past 11 years but returning to UK permanently in September. So hoping the NHS can help. Strangely if my sciatica pays up that is eased by ice but my neck responds well to heat.

      Do any kind of painkillers help your headaches?

      sue

       

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  • Posted

    Hi sjd

    I had a disc suddenly prolapse 17yrs ago, when I sat up in bed and experienced an electrical jolt up my neck and into my head. This was followed by severe dizziness. This event was soon followed by pain going from my neck, shoulders and upper back, and then I developed a frozen shoulder. It took a long time for my doctor to take me seriously and I had to pay to see a pain specialist, who did an MRI scan and prescribed a drug called Prothiedin. No other medication had worked but this did. 

    Last year a second disc prolapsed in exactly the same way. Again my doctor dismissed it and I insisted that I see a pain specialist, as I couldn't tolerate Gabapentyn or Amytriptalin. (These two meds are the first in line for nerve pain). Prothiedin has now been renamed and is now called Dosulepin. It works fine but gives you a dry mouth.

    Like you, I get headeaches, usually centred behind one eye. I also get spells of lightheadedness and giddiness. Apart from trying the three meds above, try getting a Putnam's orthopaedic pillow - it supports the head and neck far better than a routine pillow. Also, avoid getting constipated, as straining can increase the blood pressure in your head and bring on a headache. Hope that helps.

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