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Angela0987
Angela0987

I started having severe headaches tried everything to get rid of them nothing helped...Pharmacist said take Clartin ,sonIndod headaches subsided..Well not only do I have headaches I have had severe joint paint muscles aching and muscle spasms in my calf. A week or so later I started having really bad twitching..What started in my left leg spread all through out my body..My head back eyes neck belly butt palms of hands ...EVERYWHERE !!!! I have notice I have also started to have jolt like jerks in my legs and arms mostly when I try to sleep... I have had a MRI which was clear and every blood test imaginable.. All fine Lymes was normal as well.. Anyone have any ideas. I do gocfor my EEG soon so maybe that will shed some light on my issues...I am on a muscle relaxer and Xanax just to get me to sleep and cope...

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5 Replies

  • Kipper1959
    Kipper1959 Angela0987

    Posted

    Could this be a reaction to what you took for headaches.  i.e. side effects?
    • Angela0987
      Angela0987 Kipper1959

      Posted

      All I took was Excedrin for migraine..Its been over a month now since I stopped taking that.. I am so at lost to what it may be.The Excedrin would make the headaches gocaway but 4 hours later they would come back...Wasn't til my pharmacist said take some clartin that they went away...Now I have serve muscle spasms and twitching all.over..And not sure if I mention I have neuropathy in my left toe and tingling in the bottom of my heal along with the other symptoms.. I feel as if I am going crazy... It's a process of elimation.. Neurologist said she doesn't think MS..which concerned me..Now when you Google severe muscle twitching ALS pops up...Urghhhh so scary..I was wondering if anyone had twitching all over their body that had Fibromyagia? With my joints muscles aching being fatigued Neck pain shoulder pain..Thought maybe I could have that..Its a waiting game...Thankfil for medication thats gettting me through this hurdle.
  • deb97936
    deb97936 Angela0987

    Posted

    Symptoms for folk can start in any manner of ways...  for any number of reasons, just like any other mystery medical illnesses, eg: rheumy, MS, ME/Fibro and other ones.   

    Yes, your issues are reflective also of Fibro...

    I hope you can get a diagnosis soon.   I'm pleased your able to get your headaches relieved.  I take meds to help settle my neck into the back of my head (my left side is bad)...  My issues began after a serious car accident and my injuries morphed immediately into Fibro.  

    All the best going forward.  Keep us all posted on how you are, and how things are going in the GP/Specialist world.  Remember your NOT ON YOUR OWN...and WE are ALWAYS HERE to chat, vent, share, rant and cry!  :-) 

    • Angela0987
      Angela0987 deb97936

      Posted

      Thank you so much ..You toosmile I have had my share of rant, tears...etc.. It's been a rough month for me...The unknowing and the lack of sleep I thought nearly was driving me over the edge..Being sleep deprived was the worse..All combined made me feel like I was going to go crazy...It was a bit more than I could bare Friday.. I do have a cocktail of meds to get me through til Thursday..It's so good to know I have somewhere I can go to for moral support..Thank you again so much Deb.
    • deb97936
      deb97936 Angela0987

      Posted

      Your very very welcome Angela....   

      I use half a sleeping tablet when I've gone days with very little sleep.  I have even gone 36+ hours with no sleep and it gets beyond a joke.

      Flares are rotten.  

      I personally have chosen to not ever be a guinnea pig on drugs.  I take very little now.  I only have one kidney so I want to look after my insides and whats left of my brain...haha

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