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I'm so pleased I've found this forum and I've actually learnt my condition may have a name!! AO!! I'm at my wits end with pain! I've had 3 root canals, and a crown all on my right side and the pain is exactly the same as before treatment! My dentist has all but dismissed me as a nuisance as ' your teeth look perfect on the xrays' 

I'm 3 grand lighter and feeling frustrated! 

Im now awaiting an appt to she a facial specialist at the hospital, in the meantime my GP has prescribed tegretol for TN but I know I don't have those symptoms and I'm terrified of the side effects as I dance for a living! 

I have to constantly have chewing gum sat in my mouth to slightly numb the feeling .... my family don't understand how debilitating this condition is 

so pleased to know I'm not alone! If one more person says to me ' I'd have them all out'

If only it was that simple! 

Thanks for listening 

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  • Posted

    A little more info:....TN-1 is characterized by a physical point or points of discrete compromise within the distribution of the trigeminal nerve, involving compressions and stimulation of the nerve by blood vessels. I use the word "compromise" to indicate that the function of the nerve is affected in a temporary way, causing the lightning-strike electrical shock pulses of pain which TN-1 patients experience. It is probably inaccurate to use the term "injury" for this category of pain, given that it frequently responds almost instantaneously to MVD surgery.

    TN-2, however seems to have a more systemic or distributed nature in the trigeminal system. The damage mechanism -- whatever it is -- is less likely to be associated with a discrete vascular compression. TN-2 is also less likely to respond well to Gamma Knife, Rhizotomy, or other destructive surgical procedures which attempt to block pain by reducing the ability of the nerve to transmit information from the peripheries to the central nervous system. Something "throughout" the trigeminal system or one of its branches, seems to be operating to generate spontaneous pain signals that continue even after administration of Rhizotomy or GK.

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