New to forum and RLS

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I am not sure if I have RLS or not...what is happening is that my knees ache and feel tight like they are swollen but don't look swollen along with "i must move them" feeling. I have been tested for arthritis - tests came back false ...thank goodness!

It's been getting worse these last couple of months. I have tried tylenol, heating pads, ice, icy hot rubs..nothing has helped yet...some nights worse then others.

I have been reading a lot of your posts and suggestions to try...just more wanted to introduce myself and see if you all think what I describe is a form of RLS?

Thanks

Cindy

0 likes, 5 replies

5 Replies

  • Posted

    Have a look at either the RLS-UK or RLS Foundation web sites as they both have interesting diagnostic stuff.
  • Posted

    Hi there... not quite sure how they define RLS to what extremes.... mine started about 18 month  ago, just at nite, RLS for me is alfull, all I can explain is that it’s at tho it’s going through my blood, irritation, you can feel it building up, to the stage when I’m in bed, I can’t keep my legs still at all, I try and stretch to stop it, but as soon as I stop it’s there again, the only way it stops is if I get out of bed and walk up and down 🤔 but it’s the last thing you want to do at nite as be out of bed lol, if I sit still in the day I can’t keep my legs still, unless I’m busy and again walking around..

    I’m going through the menopause so I just put it maybe down to that, just not sure... but that’s MY feeling of what I get with RLS 🤗 x

    • Posted

      Hi Dawn, I too can feel the feelings building up in my knees first then spreads thru the rest of my legs....such a weird feeling. Mine comes at night when i am sleeping and wakes me up. I am going to try a B12 complex and magnesium citrate...will see if those make a difference in the next couple of weeks.
    • Posted

      Hi let me know how it works for you, and if it does at all... I saw my doc today and he said once you’ve got RLS then you have it for life 😩 I was hoping it would go away at some point.. 🤗x

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