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new to having uc.

Posted , 9 users are following.

dottie89
dottie89

This week I have been diagnosed with uc. It has hit me hard but just

wondering if there was and advice on dos and fonts to help me through

these symptoms. Will be nice to chat to people who understand what my body is going through and ask real people rather that just quotes.

Thanks

Stevie x

3 likes, 10 replies

10 Replies

  • ibdhell12345
    ibdhell12345 dottie89

    Posted

    Sorry to hear it, I'm a year in...

    Med's work for some...but they have side effects and take time. Read as much as you can, for me diet helps... Check out breaking vicious cycle boom and professor John Hunter books...for IBS symptoms the FODMAP diet is recommended also. Only do diet with doctors agreement...

    Vitamins, relaxation etc cam cant hurt!

    Best of luck... It's all slow fixes I'm afraid...

  • barbara80658
    barbara80658 dottie89

    Posted

    There seems to be more and more people with this disease.its awful it's hit me hard also.its nice to know there are other people with it and ready to help you on here.i went on loo 6times this morning you think there can't be any more left in me.and I have tummy ache.just took Imodium hoping it will end
  • jon13689
    jon13689 dottie89

    Posted

    Hi Dottie

             Sorry you have this uc, it is managable with the right medication, My wife Marie was diagnosed with uc and is currently on 2 or 3 different sets of tablets for it.

    It is a good idea to talk to others about it then you can get support and advice which always helps.

    Please keep in touch with us and let us know how you get on with it. Good luck for now.

                                Jon and Marie 13689

                                       

    • barbara80658
      barbara80658 jon13689

      Posted

      Can you tell me what she is on please.cant seem to get mine right.
    • jon13689
      jon13689 barbara80658

      Posted

      Hi Barbara,

                 Thank you for your reply, Marie is on predisolone, octasa steroids, and adcal. Check with your GP before you take these as everyones system is different.

      They do actually keep these flare ups at bay she does not have to many, we will know more at our next appointment in march at JPhospital gorleston in great yarmouth.

      Hope it is helpfull to you, good luck

                                       Jon and Marie 13689

    • barbara80658
      barbara80658 jon13689

      Posted

      Thankyou Jon I am only on 1enama at night salofalk .never slept a wink last night for diareah does Marie sleep ok.havnt had a good nights sleep since June.mmust get more pills sorted x
    • jon13689
      jon13689 barbara80658

      Posted

      Hi Barbara,

                       Yes marie does sleep ok at times she was taking pentasa which I had to give her as its easier and it seems to hold it at bay, see your gp and try and get some but remember every one is different good luck.

                      Jon and Marie 13689

  • tony33900
    tony33900 dottie89

    Posted

    I have to go with ibdhell and the diet. I use Paleo but there are many different ones you can try(heard good things about the scd diet). Diet has been the biggest thing for me and have at times gone two years without symptoms and without having to take medications. Alcohol is a very big culprit along with sugar at least for me, so I avoid those like the plauge.

    Patience while difficult is part of it as by the time you get diagnosed your body has taken quite a bit of damage so both medication and diet will take time to start working while your body recovers.

    It can be stressful so try to find something that relaxes you be it reading, yoga anything that keeps you sane.

  • caroline21768
    caroline21768 dottie89

    Posted

    I was diagnosed 10 years ago at the age of 18 I took it really bad and stopped doing everyday things like walking to the shops! With in time my confidence grew and I have traveled the world twice since!

    the best advice I can give is Do not let it stop you from living! It takes time but it's an illness we will have for the rest of your life once you come to terms with your medicines get out there and enjoy life! 

    When I suffer flare ups I do slow down and hold myself back from time to time especially when I n others no toilets around but I push myself and feel great when I do something. 

    good luck with it 

  • cee97495
    cee97495 dottie89

    Posted

    I was diagnosed with uc November last year, it's really hard but, it's good to do things that distract you from it, so you don't go insane!
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