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New to Labyrinthitis... share and ask (help and info appreciated)

Posted , 4 users are following.

Northface
Northface

Greetings everyone, about a week ago I was tentatively diagnosed with labyrinthitis, and as far as I can tell, all my symptoms seem to be pointing in that direction. It all started with a  3 weeks ago with spell of dizziness (sea sickness type, not spinning) while I was doing my groceries and then gradually was hit hard with all the other symptoms fatigue, blurred vision, difficulty with concentration/feeling confused and hazzy through the first week. I suspect I caught it from an upper respiratory infection/flu which I was also fighting at the same time for the first week (sinus congestion, sore throat). By the second week my flu had subsided, and the dizziness was becoming manageable, but then a whole slew of other weird symptoms started to arise--- nystagmus (both eylids twitching involuntarily), numbness in parts of my face and tingling on my head, and worst yet hearing loss. I was doing a nasal rinse on the Wednesday of the second week and after blowing my nose I instantly feel an aural fulness+pressure with ringing (tinnitus) and noise sensitivity. I recently had an audiogram done two days ago to test for loss, but they found none. Nevertheless, I have grown very concerned about this particular problem (hearing) and want to ask if anyone else has experiences something similar and if so was it temporary or permanent. I was optimistic going onto week four feeling ahead of the curve apart from hearing, but about two days ago I had a relapse into dizziness/nausea and exhaustion that made me bedridden for the latter half of the day. What's been the most consoling so far is reading other peoples experiences and input and knowing that I am not alone even though I may be in for the long haul.

If you have anything to impart that may be helpful for me, please feel free to reply!

0 likes, 5 replies

5 Replies

  • jacqueline06286
    jacqueline06286 Northface

    Posted

    Hi are you going through perimenapause do you have headache fatigue lathargic 
    • Northface
      Northface jacqueline06286

      Posted

      Sorry I should have mentioned that I am male, 33 years of age. And surprisingly no significant headaches or migraines since it began. The brunt of the fatigue had pretty much dissipated by the second week, but I feel absolutely spent at the end of a work day. I just started back part time 2-3 days teaching last week, but I am free to to it as slow as I need
    • biliarydyskines
      biliarydyskines Northface

      Posted

      hi  , i'm 36 year old male and i have these symptoms  but i had digestion issues where i have gallstones. so if you dont have these issues, then something to do with ear crystal.

  • kerry51603
    kerry51603 Northface

    Posted

    Hi I also started of with an an upper respiratory problem which left me with a shushing noise in both ears I then got the vomiting and dizziness, was on antibiotics and when they finished I felt great for 4 days. Now I have been left with terrible neck pain and pressure in base of scull and jaw area. I take betahistine which seem to reduce the pressure in my head not sure how they are helping though as they are designed to help to produce blood flow to inner ear. So don’t know what they are doing for me as I don’t have the regular symptoms of labs. Anyway I’m in to week 9 got a ct scan on sat but won’t get results for a few days, I am worried sick it’s something more sinister. R you taking any meds for your symptoms? Xx
    • Northface
      Northface kerry51603

      Posted

      Thanks for sharing, I have been given a low dose of steroids (prednisone) for about a week to try and curb the inflammation and prevent further inner ear damage from it and havn’t noticed any significant gains from it. I also had a CT scan done that came back negative as well as multiple blood tests pretty much the same. I’ve seen numerous doctors with the exception of an ENT and most don’t appear to be concerned, since my symptoms are not life threatening, but severe enough to keep me going back for medical attention. And I get their point of view, they can treat symptoms but can’t really do anything for the underlying cause if they are unable to pinpoint it. So it’s become a waiting game of time/patience and many tests to provide more conclusive data. 

      About the CT scan, for most with symptoms aligned with vestibular disorders, even severe ones (vomiting, headaches) they come back negative, now that’s not to say your alright or nothing serious is wrong, but MRI’s and other measures tend to be more precise in diagnosing illnesses in this area.

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