New to PMR
Posted , 2 users are following.
What a joy to find this website. To find other people struggling with this strange disease. I have been suffering for nearly 2 months with what I thought was thigh strain. After hip x-rays (no probs) my GP suddenly jumped on to PMR as a possibility after I said I also had great pain in my shoulder, which I knew was impingement and am booked in for injection.
At least that was good news, I was sent for a blood test which came back with several indicators for PMR. I was started on 20Mg of steroids which has had a slow start and took over a week before I felt any benefit but I have now had 2 days of almost no aches or pains. No more painkillers!
Am I being premature in my joy? It seems to me from reading your comments that this is a very unpredictable problem. Can I expect a reasonably fast recovery or could it drag on for ages.
This seems to me to be a little known disease and I never thought I could be in such agony and suffer so much sleep loss.
Thank you for your comments; I have drawn a lot of strength from reading them.
0 likes, 4 replies
MrsO-UK_Surrey
Posted
MrsO
Lizzie_Ellen
Posted
Sorry to hear you've been diagnosed with PMR. If its any help, I was diagnosed in September, Prednisolone (15mgs) brought very quick relief, followed by a small hiccup for a week (a few aches and pains returned) but now already starting a slow reduction (12.5mgs and going down). I've had hardly any side-effects from the steroids (I choose to ignore anything going on inside that I can't see!) and feeling very well. Just one warning note, if you get a bit of a hiccup be very careful what pain killers you take now you're on steroids. Anti inflammatories and steroids don't mix, so would suggest you talk to your pharmacist before you take anything. I'm very happy with the way my PMR is progressing at the moment and hope that encourages you.
Lizzie Ellen
Mrs_G
Posted
sog
Posted
I have found that I have lost weight around my thighs and bum which still makes sitting for a long period a bit awkward.
Sounds like your dose is reducing quite quickly, Lizzie Ellen, cant wait for that. Reading some of the comments about being on for years sounds quite scary!.