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new to the forum; but not HS

Posted , 4 users are following.

p53310
p53310

Hi everyone,

Im a 26 year old male who has been living with HS since I was about 14, I was diagnosed two years ago. I've only had symptoms in the groin area as of yet and am afraid of it progressing. I wonder if it will progress to other areas if it has remained in this region for the past 12 years?

My flare ups typically last a few weeks; I am on apo-doxy 100mg right now, and I see another bump forming. Does this mean its not working for me? I have been using clindamycin topical solution on my bumps whenever they appear and that seemed to help until recently, so i saw an MD to get some doxycycline. I am waiting to see a dermatologist again, but the wait list is long.

Once I get off the doxycycline in a week, I plan to pursue some natural remedies. I was thinking Vitamin A, D, Zinc and Turmeric.

Can someone help with the progression question and maybe some of their experiences with these supplements?

Thank you so much

0 likes, 2 replies

2 Replies

  • barbara91275
    barbara91275 p53310

    Posted

    Hiya, I've had it in my groin area for the last 25 years, I'm 39, female.

    I use iodine scrub soap or normal iodine. Zinc salve, for diaper rash.

    Anti-acne facial wash.

    Magnesium baths, with magnesium flakes.

    The next not perse for HS:

    Zinc supplements, magnesium supplements, L-Carnitine.

    I think Zinc and L-Carnitine are helpfull for me for HS.

    And no chocolate milk bars or I have bumps and outbursts!

    Nothing the doctor gave me helped.

    I also tried CBD balm, but no improvement. Cannabis salve with THC helped a little.

  • terramerkley
    terramerkley p53310

    Posted

    my son (12) has has HS for 4 years now. he has been on doxycyclin, clindamycin and rifampin together. now he is on Humira 40mg every 2 weeks. the last derm appointment his dr added a ZINC supplement and clindamycin solution (comes in a bottle like a bingo dabber- so easy to apply). it seems to combat any new spots that start. his spots appear on his bum (cheeks) and groin. one appeared on his chest and he had 2 on his face a few years ago. Humira has been the only drug that has even touched the HS for results. he seems to be tolerating it very well. i dont know if any of that info is helpful or not, but it may be comforting that you are not alone.

    Terra, mom to Nicholas

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