New to the forum seeking help and advice

Posted , 7 users are following.

Hello all to cut a long story short my doctor suspects I have fibromyalgia after 4 years of fatigue and headaches and depression. And now 2 years of all over body pain and weakness. I was givin gabapentin today to try out for 3 weeks to see if this helps but I also take co codimal and tramadol I am a walking zombie. Does anyone know if this helps? and does anyone know anything that may help me manage? Everyday is a struggle and I'm young I see no hope for the future why does this happen. Thanks 

0 likes, 7 replies

Report / Delete

7 Replies

  • Posted

    I just started gabapentin 2 months ago and it didnt help me it made me feel worse I felt like a zombie and i felt twice as bad so i quite taking it. I just take flexeril but it doesnt help me much either i go back to my doc next week. Hope this helps 
    Report / Delete Reply
  • Posted

    its auto imune know knows why it happens , in my case it could be linked to my aspergers as this also makes you over sensisitive to stimulus and medication thats why in 10yrs of pain iv left all meds offered because theres nothing they can give u thats going to help with out causing other problems, long term. i use acupunture that is recomened, excersise little and often i feel rally daft i have a powered tredmil i can only do like about two mins at a time because i get knackered , but it makes i diferance to stiffness , if u give up on excersise because it hurts and it does, or because your to tired, you will get more stiffness and feel more depressed,[ i know] if you have a sports centre with a hydro pool thats brilliant, my dream is to be able to afford one of those hot tubs or a hydro massage bath.

    increase your magneisum that helps with cramps and fatigue, but its a slow progress best buy a magneisum spray oil rub it in the soles of your feet before bed nightly, you can buy it in flake form that u put in bath it is expensive but it does help ,

    , just put in spray magneiusum oil in search on ebay and look for his user name . i have also found a oil , called rapid rhaumotoid relief oil which has helped me get restful sleep , befor using it i was up 3/4 times a night with the pain,putting on arnica which just worked for an hr or two but this gets me thru the night. hope iv been of some help . dont give in to it .

    my daughter at 27 was struck with rhemotid ahritus which attacks her joints all over her body misshapping them ,and making it so she cant even get in the bath, id rather have the pain and stiffnes and fatigue of fibro , than that . althou it is also auto immune condition the same as us ,its much more damaging.

    keep strong oh also found that relaxtion cds work very well if done daily , dont let silly comments from people upset you , i swear if i hear one more person say ,[well we all get tired] i wont be responable for my actions. its like saying we all get headaches to someone who suffers from migrains. laughter really does help find stuff that makes you laugh and use it as part of the battle plan. good luck .

    Report / Delete Reply
  • Posted

    hi ashleigh...its all a trile period....i finally decided to try medication other than tylenoli  am currently on Lyrica....it takes the edge off the pain, but foot cramps are bad, hand cramps of better....i keep a old fashion hot water bottle, filled in the freezer at all times, and use it 10 minutes hear 10 minutes there all over my body!

    lots of rest rest rest.....thats all i do...mini naps help too....good luch 

    Report / Delete Reply
  • Posted

    I am also on gabapentin they take the edge of the pain a bit but I have to take my pain killers ,I am always in pain some times I think there will be no end to it as all I would like is a few days of pain relief , I ran out of gabapentin once and pain unbearable so that's when I discovered they helped me a bit ,after quite a few different meds the ones I am on now sUit me but as I said I'm never without pain . Because of all the tablets I have a bad mouth and I have had that for 2 years I have been told no cure but they will try and get meds to take edge of pain and to make it comfortable , I can hardly eat all I seam to eat theses day is pasta, and noodles.you will just have to keep trying till you get what helps you remember you will never be pain free but hopefuly you have a good GP that will help best they can . I hope you get a bit of ease soon 
    Report / Delete Reply
    • Posted

      i had a bad year last year till i found my new regime, and stayed in alot i dropped dangerously low in vit d  .had to give in and go to doctors , as soon as i mentioned bad pains in my feet he checked me for vit d definces with blood test and it was very low. but he also told me to buy the vit d from holland and barret because what he had to perscribe was the wrong type. i didnt relise that a lack of vit d could cause ulcers i would have that would been vit c .Still u learn something new every day.
      Report / Delete Reply
  • Posted

    Hi..

    there is a serious connection between chronic pain and depression.. I have FM AND MANY SERIOUS ARTHRIS's every year I deal with more health iss a stress family related.. I take Tylenol with Tramadol works better for all over pain tan taken separately. Tramadol makes me itch so take something for that... Then depression can't sleep... It's a vicious circle.. I keep trying to find a cure for FM always have hope for a better tomorrow.that is all I take once a day.  I am Not a zombi....u to can find a way to feel functional and well at the same time. Tell UR doc demand he needs to get u to a better place. He works for you.... Be nice and take a journal of UR daily issues from meds... They can refer u to a FM specialist who can regulate UR meds better to suit UR needs. 

     

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up