New to the forum, trying to manage BPH

Posted , 17 users are following.

Hello, 

I've been reading this forum for several years but this is my first post. 

I am 53 years old and my urologist has diagnosed me with BPH more than 5 years ago. I have had several bouts of prostatitis over the past few years, this last one, back in May of 2017, resulting in full urinary retention landing me in the ER with my first Foley catheter.  

I am very healthy and strong in all other aspects of my life.  I work out daily, I have very little body fat , ( I actually have six-pack abs! ) I eat healthy, I almost never drink, I don't take any prescribed medications, my blood tests are great, no high blood pressure, etc, etc.  I am very conscious of my health and I feel like this BPH is some kind of cruel joke being played on me!  

Years ago I was prescribed Flomax , which I only took for 1 week but stopped because of the dizziness side effect.  After this last May, coming out of the ER, I tried 5mg of Cialis daily, which actually did help with frequency and overall flow and of course better erections, but also made me dizzy.  I cut back to 2.5mg daily, but stopped altogether after 30 days.  I don't like medications!  

Today, I manage my fluid intake when I travel ( Flying, driving, etc ) when I know using the restroom will not be easily available.  But still , run into extreme urgency when stuck in traffic or a plane trip.  

I drink a lot of water during my workouts and just go pee every 15-30 minutes afterwords. 

Night time can be hit or miss, depending on when I stopped fluid intake.  It can be 1-3 times up to pee.  

So, two questions for the forum.  First , I am considering some procedure, but I have no clue on which one to go with.  My wife says "go have surgery and all will be great."  But I have read many of the nightmares on this forum.  I just want to be able to pee normally, I mean during those urgent times when I can't get to a toilet, when I finally get there...it just dribbles out and causes a chain reaction of very frequent trips to dribble! 

And secondly, the 3 times I have had prostatitis ,was always a few days after drinking a few beers.  As i said , I almost never drink and so it's easy to see the effects when I do.   I am done with beer for sure, but has anyone else seen a correlation with beer and prostatitis?  I am afraid to have any alcohol at this point for fear of full retention.  

I am looking for guidance and advice and this forum seems to be the most active and comprehensive on the internet.  

As I said, I have been reading your posts for years and so thanks to all for sharing your experiences.   

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  • Posted

    I am older than you, but my BPH problems started about 10 years ago.  My problem is retention of urine,and as the problem progressed, I would not have a natural void until my bladder contained round 1500ML of urine.  The void was small, and I had a very weak stream.  I was on Flowmax for a year, and the problem continued worsening.  I went to a urologist.  I was scoped and then had a video urodynamics performed.  I encourage you to follow the the advice posted here regarding adequate testing.

    My biggest problem appears to be low detrusor pressure.  I was instructed to self cath.  I have been performing CIC for nearly 4 months.  I self cath 4 times per day.  It has given me back control of my bladder.  I do not wake up in the night, I do not have a sudden and almost uncontrollable urge to urinate, I don't continually worry about finding a bathroom.  I travel, and I am often away from home during part of the day.  I have no problem finding a place to cath when away from home.  CIC has given me my life back.  It doesn't sound like it is a fun thing to do, but I much prefer it to my previous situation, and I want to avoid surgery.  I have a regular routine. My doctor and I are hoping I regain bladder function, but I have no natural voids, even though I often feel the sensation of needing to urinate.

    Bottom line, get testing done, and then do what you feel is best for your problem.

  • Posted

    Hi, I am sorry to hear of your situation. I started experiencing problems with my prostate in my 40's I am now 78.

    ?Like your self you hear of all the things that could go wrong after surgery so you perceiver with it.  But mine got so bad that I developed an infection which advance on to sepsis. And I was in hospital for10 days. During this stay I eventually got to the point where I  could not pass water at all and was eventually catheterised. I am sorry if this might put you off but in actual fact it was the push that I needed. I went out with a  catheter and after nine weeks I had the operation and I don't regret it. At last I could pee normally at last.  I still have a very very large prostate and although I am peeing reasonably well it is not quite as good as when I first had it done. This problem is caused by the fact that scare tissue from the operation has formed around the neck of the bladder. I did a lot of research in to the different treatments available and there was one that I came across which more or less guarantee's no side effects. And this is called  "Green light Laser surgery" the only trouble is this can only be performed privately and will cost over 5000.00 pounds. but you are only in hospital for 24 hrs. Hope this helps

    • Posted

      5000 pounds, are you in the UK ? GL has been available on the NHS since 2004 when I had mine. It is now the recommended procedure for the NHS by NICE. With an estimated 13,000 a year needed to be done. Some hospitals prefer Holep as tissue can be save to check for cancer cells and do both procedures.
    • Posted

      Hi, thanks for getting back to  me it is appreciated. Yes I live in the UK but I was not aware that this procedure was available on the NHS and if that is the case is it only carried out at certain hospitals since it was never mentioned when I had my operation
    • Posted

      Sadly there are still a few old school Uro's and GP's  who still think that TURP is the gold standard.

      It was new when I had it done and insisted that I be referred to Newcastle from Scotland where it was not being done at that time.  

    • Posted

      Of course years ago that was all men had to help with there problem.  But today is a new day and time.  Men have other goals and don't what the side effects.  Take care all  KEN .   

  • Posted

    Hi my friend, your story is too familiar to me...similar lifestyle (lots of sports, trying to eat healthy, little alcohol, avoiding medication and drugs). I have been fighting off going to the urologist for many years. My urine flow started to get slower and slower for years (I am almost 65 now). Ended up with acute urinary retention after a marathon run in February 2017....ER and follow-up visits with the urologist. I have been studying options for several months and had surgery this past Monday. There are several options available, but you might not fit to all. The different alternatives have of course pros and cons as well. Urolift is the  least invasive and leaves you still open to do MRI's 3T if you choose to do so. Focal Laser Ablation (through the colon) and Urolift (through Urethra) won't give you retrograde ejaculation. Laser (urethra) with a high percentage according to the forum, according to the urologist 33 %, Turp (Urethra) which is considered the gold standard and has been there as a first modern procedure, (caving / cutting out the prostate has a higher percentage of retrograde. Rezum (urethra) is water vaporization and also not too invasive. Ask an urologist you trust in (a person you feel you can trust and makes you believe that he really cares for you) which option is best for you. (in my case the prostate grew pushing in to the bladder). Then you need to define for yourself the importance of having ejaculations with fluid vs dry orgasms.

    I did Laser / PVP on Monday. As for now I really cannot say much, except the following:

    a) procedure went well, woke up without pain, did not take any pain medication since

    b) went back to normal the day after

    c) have been able to void well and quickly

    d) second night I had to go up every 1.5 hours....last night I did make it to 3 hours (before surgery I usually could sleep between 4 to 6 hours without interruption)

    e) no incontinence

    f) up to now 0 libido, 0 erections and 0 ejaculations....that will be interesting to know how this outcome is going to be in a couple weeks.

    Not being able to pee is very uncomfortable...I have gone through this hundreds of times...trying to pee and drops are coming and then frequent trips to the bathroom to finally void the bladder. I also did selfcathe sometimes in order to get done quicker. You might want to try this as a last resource. Had prostatitis as well...so after all...we do something wrong in the west world with our eating habits, since this BPH problem is rapidly growing over here.

    I am living in the Houston area. If that is  your home turf, I can provide you with additional information you might want to get. It is an unpleasant thing we go through, I totally agree. But pay attention to the symptoms and find out what is best for you. Good luck to you!

    Emil

     

    • Posted

      Thanks for the info- good luck on your fast recovery!  Im in the Los angeles area. 
  • Posted

    Hi bobcat, I tried raw food diet for an entire year thinking it would help my BPH. I stay in very good condition year round also.

    Last time i drank a beer I went into retention and it was not fun. thats when I decided something had to be done soon. Recently had the Pae procedure. After careful research I strongly believe it is the least invasive. If it doesn't work you have all the other (more side effects) options. Its  been 44 days and flow decent, the big difference is tine between. I now am able to hold it if necessary. Im averaging 3 to 5 hours between urination. I sleep 7 hours on average without bathroom breaks. I was on 2 flomax per day and am down to 1. Doc says I usually takes a couple months before I can drop off retrograde tablets for good. 

    • Posted

      So beer is a problem for others as well.  How about wine or other alcohol?  44 days , sounds like you are doing well. 

       

  • Posted

    Im thinking alcohol in general has caused a few urgency and frequency issues.Ive always enjoyed a good microbrew. What really motivated me was Dr. Karamanian pointing out on Mri, the bladder was thickening due to straining over the years.

    I was seriously looking at focal laser ablation. Fortunately my insurance covered the Pae. Pae Doc is located 50 miles away.

    • Posted

      Alcohol can exacerbate BPH considerably - but if it does, it means you have bladder issues along with BPH.
    • Posted

      The only reason I bring up alcohol is, the last time I drank 2 beers last may I went into full retention for the very first time in my life.  I just want to know if the occasional drink is off limits to me. 

      Last May I had 2 Japanese craft beers that were supposed to have some kind of high yeast still fermenting in the bottle.   I don't know about all that, but the day after starting giving me trouble and by the second day I was in the ER.  Male  Yeast infection?  I have not touched a drop since.   

    • Posted

      Probably best to carry a catheter if you want to drink so you don't end up in retention. Retention after alcohol is a probable indicator or bladder issues

  • Posted

    I can relate that prostate/urinary problems are like some cruel joke. I'm 54 and after being on a active surveillance for prostate cancer for several years and successfully avoiding an operation, I get urinary retention and a weakened bladder and have been CIC for almost a year now. My bladder seems to be improving, but I have an obstruction and my Urologist recommends surgery to remove the prostate. No thanks, for now trying to get educated on other options. I'm taking some meds and also don't like the dizziness, but they provide some help to be able to pee between CIC.

    As other have mentioned, get educated and try to figure out what will work best for your situation, and don't let anyone try to rush you into a procedure.

    • Posted

      Hi DB, I started out cathing 4 times a day. Now with meds and with my bladder rehabbed somewhat, I only Cath once before bed. Hank
    • Posted

      Depending on the nature of your obstruction, there may well be a procedure short of surgery that could help/eliminate it. DO NOT let them remove your prostate!! I would find another doc up on modern procedures and see if Rezum, FLA, PAE Urolift or iTind might solve your problem without a knife or anesthesia.

       

    • Posted

      Hank - How long did it take you to get to just once a day? Also, do you have to use the meds to be able to do just once a day, do you ever try to go without the meds?

      I forgot to take mine a few nights ago, and it was like I had never taken them and had a hard time voiding naturally all day.

    • Posted

      Thanks oldbuzzard. I went to see a local urolift expert and will be having another cystoscopy so he can see for himself the cause of the obstruction to see if I'm a candidate and will go from there. Also had another PSA test to see where it's at now. He mentioned something about it possibly being a little high because of the CIC, it'll be interesting to see where it's at now.

    • Posted

      Even if you aren't a candidate for Urolift, you might be for one of the other less invasive procedures. Also, don't get sucked in to the PSA trap. Lots of things can elevate a PSA and the chances of an elevated PSA leading to life threatening cancer are in the 1% range. Use your current self cathing reflective PSA# as a baseline and see where it is next year.

    • Posted

      DB, it took me a year to be able to Cath once a day. Yes, I need meds to do that. Without meds, I still have bph symptoms and retention (PVR) is still high so I  would have to Cath 3, 4 times a day. My bladder is still getting better. One day I might be able to stop cathing completely, then I'll deal with the meds, hopefully. Hank

    • Posted

      As a point of reference, I was able to decrease my CIC frequency from 6x or more times a day to less than once a day (currently), over a 3 1/2 year period. My personal take on drugs was that as long as I had to cath, why deal with the side effects, I'd prefer to just increase my cath frequency.  If the drugs could get you off CIC completely, that would be another consideration. As I've previously stated, I put less focus on natural voids and more focus on simply keeping total volumes below 400ml so that the bladder didn't stretch and was allowed to heal. 

      Jim

       

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