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Hi, I've been looking at the site for a few months but this is my first post.
I was diagnosed with rheumatoid arthritis 15 years ago. It came on very quickly and within 6weeks it affected most of my joints. After starting anti TNF injections I got my life back and was able to carry on as normal apart from the odd flare up, I thought that I had it if not beaten RA then definitely had it under contro
I have been struggling with breathlessness,coughing,chest pains for quite a few years, gp s and even rheumatologist dismissing it as RA in my breast bone and wear and tear.
I saw a locum doctor who thought differently last year and after tests I was diagnosed with pulmonary fibrosis caused by rheumatoid nodules and scaring in my lungs, also fluid between my lung and chest wall! This was in September last year, I wasn't really given any advice and I didn't know what questions to ask. At a second scan and lung function tests in May I was told the noduuals had grown to 6mm and were in both lobes still no explanation and no meds.
After 4 chest infections since then and this weekend really struggling to exhale and painfull to inhale I am going to my doctor tomorrow morning to insist that I I want information about whats happening as I I just don't know. But need someone to talk to me about this disease and explain, I'm not even sure if numerous noduals of that size is bad. What I do know is I'm struggling to have any quality of life at the moment. If anyone as any advice on what questions I can ask I would appreciate it please.
Thank you for taking time to read this. Linda
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