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A few weeks ago my GP phoned and said my PSA was slightly up and asked my agreement to attent the local prostate clinic. A agreed was was alarmed that she sounded upset. When I got to the clinic in less than a week I found my PSA was 18 and had been 10 two years earlier. rectal examination showed some slight irregularity and a and MRI scan was followed by a biopsy.
I am now very anxious and awaiting a review at the clinc next week. From my gathering of information so far I feel I have to steel myself for very bad news. Am I being foolish?
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james87879 georgeGG
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If your psa was 10 a couple of years ago that was way too high then should have been 5.Now two years later it has almost doubled.This means cancer cells are growing fast so i would not think it is slow growing.There are very aggressive cancers
Find a good urologist get all the information you can.if you are fit and the cancer is contained you may be able to have the operation.My advice is face, it accept it and do all you can to be easy on yourself.it is rough for a while.I have had treatment and im back to normal.Everybodys journey is different.Good luck
georgeGG james87879
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james87879 georgeGG
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georgeGG james87879
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georgeGG
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Thank you all very much, George
Dudley71081 georgeGG
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it it is good to hear that you have at last obtained a degree of relief from the acute anxiety which you have been experiencing this past week and which has been, not a little distressing to observe.
Stubborn resistance is the name of the game George !
The strength and fortitude to endure what you wil have to go through to various degrees ( like all of us, in a similar position ) will have to come from within yourself. Comfortingly you have your Faith and as you just now re-discovered, the therapeutic benefits of getting out of doors and in communication with Nature and the wider world, as opposed to being stuck behind a screen and a keyboard.
if I may George, a word also about your G P. For the overwhelming majority of Practitioners medicine is a vocation and their desire to both heal and comfort is paramount. The speed with which she organized tests, scans and appointments for you, is a clear marker of good care. My take on why she sounded upset is because she knows that medically there is now little that she, within her Specialty, can personally do for you and not because you are ' doomed '. Which you definitely are not ! ( I have come across this same genteel empathy twice so far during the course of my own treatment ).
Perhaps you will also allow me to make an observation about Medical Forums in general which may be helpful to you. By its nature, the medium allows for anonymity and has no way of knowing about the veracity of statements being made by, ostensibly, patients and or relatives/ friends thereof. Where there is a lack of clinical detail or a convoluted and difficult to follow treatment pattern it is often difficult to see the benefit of the Post.
The lofty objectives of the site(s) can be and perceivably are being compromised, by certain individuals who for whatever reasons, visit a large number of sites and join various discussion groups over a wide range of topics. patient.info ( PCouk). has an inbuilt and accessible 'personal activity' file for each Member from which I note that Mrs O for example, has as @ 3/8/14, visited PCouk in general, 3,949 times and Specific Forums 2,955 times. Her interest has ranged avidly through an incredible number of topics, from all manner of systemic diseases, to various forms of abuse, to Torsion of the Testes and to where we come across her, in Prostate Cancer.
Peter06554 a Prostate Cancer sufferer on the other hand, has visited sites 501 times and Specific Forums 191 times. My statistics are since March '14, visited 27 times and looked at 20 discussion sites. My medical statistics are : Gleason 7 (4+3), T2b and PSA 10, TURP Feb '14 and 42 Radiotherapy sessions, with review on 2/10.
Good luck with your appointment(s) this week. Whatever the results it may help you to cope George to bear in mind, that there will always be countless thousands in a worse position than yourself. I don't know if you have had your wife with you on previous medical discussions but if she is able to be there, both for you and for herself, it will be of benefit in the long run. Dudley.
georgeGG Dudley71081
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Thank you indeed for that note. You are proving to be a friend indeed. I have never had a period to such inefficiency and uselessness as those three days consumed on gnawing, purposeless anxiety – hope and sense being battered down by ignorance, despair and fear. You and others were of real help to me. The battle has not been joined and the forces against me not even quantified and may prove to be vapour which vanishes in the warmth of the morning sun. But if a mighty army, well, I will stand against it with fortitude.
Whatever the situation actually is, strength and fortitude are the answer. That is in human terms. It is also the stuff that holds unwavering sure confidence in the promises of God established in the Lord Jesus. Although he has promised never to leave nor forsake us he warned that in the world we would have tribulation. Yes, we need strength and fortitude. These are an uncommon pair of virtues in our present age.
Thank you for your comments on my G.P. There is balm there too. Happily she is the G.P. of my wife so I hope we shall together receive wise medical counsel from her as she will know the weaknesses and difficulties of both of us.
I should be glad if I may send you a private message on the use of medical forums. I do not yet know how to go about it.
I have had considerable and very sensible advice to involve my wife in the discussions at the clinic. That has made me think around the issue even more carefully. Certainly I need her to be well informed. I am entirely confident that I will have her loving support. Given our different characters and abilities, I think I will find it better to learn the details alone and involve her at each clinic thereafter. An early consultation with our G.P. before the clinic to decide on treatment looks essential too. Well! I have three days still to review this point before I must decide.
Thank you again for your kindness, Dudley. Your many comments are of great value to me.
George
Dudley71081 georgeGG
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As you are hearing impaired, of which remind your Consultant, it would be a good idea to have him/her write down your results on a sheet to be given to you. Additionally for me, my Urolgist drew my prostate egg- shaped, thicker end being up against my bladder; he then drew a line through it lengthways, giving R & L; then he drew two equal-spaced lines through the prostate crossways. So now my prostate is divided into 6 parts. Then he wrote as follows: on the RHS up against the bladder and in the first section 68% ; in the next section R ( the middle ) 22% ; and on the L first section 24%. I then had a clear and easily understandable picture of the extent of my tumour which because of it also being in a retrograde position, is inoperable.
I then had a mini-TURP and BNI to facilitate voiding during and post Radiotherapy, which treatment I otherwise could not have had. Only a small/ medium amount of tumour was removed during the operative procedures.
Due to changes in the shape of the gland discerned by imaging, both Consultants ( Uro and Onco ) were quite certain that cancer is microscopically outside the capsule.
and so I was given 42 sessions of Radiotherapy. 28 to a broader area incorporating the seminal vesicles and 14 at a higher dose and more focused upon the tumour.
i travelled pretty well through this and experienced only 7 out of the possible 45 side effects. Three remain with me and even over time these may not resolve and could, I was advised, even get worse. So be it. I am still here, I may have achieved remission and I can only live one day at a time anyway.
As cancer cells are already outside of the capsule they hit the area with everything they had, and which I could have RT-wise and I was told, I cannot have anymore RT except maybe for one or two doses which could be aimed at a subsequent metastatic tumour to relieve pain.
But come what may I was comforted in that I was well informed by the various medical staff caring for me. And care is the right word. They were terrific.
i can only hope that you will be similarly cared for.
dudley
georgeGG Dudley71081
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Thank you very much for that long note with many facts which will build up my ability to understand what l am told. I agree that the point about having a friend to sit in is of great importance. One who will be able to fill in the gaps of the things I have not noted or not understood or worst of all misheard.
This point was raised in another forum and I could only think of one friend who is unavailable and another who is under intense pressure as his wife is in her last few weeks due to cancer of the kidney with multiple secondairies. You kindly also raised this point and got me thinking again. Perhaps there is another friend. I shall try to see him tomorrow.
Thank you for your kindness and friendship. George
georgeGG Dudley71081
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When I thought about why I had been beating myself this morning with a belt and then a cane I realised what had been going on and became really frightened. It is one of the side effects of the antibiotics (ciprofloxacin) I had been given for the biopsy. The hyper-anxiety followed briefly by almost normal concern and then sad, morose acute anxiety and then this morning beating myself which made the miserable gnawing anxiety seem more bearable. The side effects as I best as I can remember them were something like … “depression, self harm, attempted suicide, actual suicide. ,,, may last some time. (I smiled grimly when I first read “actual suicide ,,, may last some time.) I wish I had kept the leaflet. I should hate to add to the statistics of those killed by side effects. And I thought I had got away with no side effects.
Other lists of side effects (from the web) cover the point but more lower key if risk of killing oneself is ever low key.
I am certainly feeling very shaken at the reach of the side effects of that drug. Another side effect, ruptured tendon can occur months later. That said, I had no infection after the biopsy and healed with amazing speed.
So I led you all a merry dance, not at all realising why I was acting and feeling so out of my usual character. I hope this unpleasant and potentially dangerous phase passes soon. I shall cope much better with the results if I am my usual calm optimistic self.
Best wishes
George
Dudley71081 georgeGG
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Please try to relax if you possibly can and to not worry so overtly. Try not to over-think things at this early stage. Give yourself a break !
As James 87879 said ' do all you can to be easy on yourself '. So I think that rules out self flagellation ! Also don't forget, someone might want to re-examine you and you wouldn't want to have to do some awkward explaining.
Presumably you are now off the Ciprofloxacyn and so the side-effects should be on the wane anyway.
If I remember correctly, you will find out the results of your biopsy and scan(s) this week?
Knowing where you stand will, no matter what the diagnosis/prognosis, be a release of tension and anxiety, at least. Also you will then have a treatment plan and can marshal your energies into maximising its therapeutic effects.
On the other hand however, if you do not obtain any relief from the acute mental anguish you seem to have been experiencing, you seriously need to seek professional help.
You might also like to consider whether entering daily into lengthy P C email correspondence is at this stage, advisable or helpful to you overall ; and whist you are unfailingly polite it would not be rude to leave well meaning contributions, including this one, unanswered.
If good will can make it so, then you are going to be alright George. As Shakespeare said ' tere's nothin so bad, but that thinking makes it so
kind regards
Dudley
georgeGG Dudley71081
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Many thanks for your good sense and balm. You have every reason to reckon I am a bit of a nutter. And so I am at present. I am usually quiet and calm. Ah well, this will work itself out of my system. The review tomorrow will certainly help, perhaps resolve it entirely. If not a few more days should see me back on an even keel.
You will find me rather dull then.
Many thanks
George
Dudley71081 georgeGG
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Become dull ?... Don't say that ! The Director of my Theatre Company has already drawn up a short-list of roles for you !
Best Wishes
Dudley
georgeGG Dudley71081
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That has given me a big smile. Thank you. I am lying in bed prodding at my iPad and feeling relaxed, comfortable and happy. What a blow to the theater loving public.
Cheers
George
georgeGG
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I have had my first diagnosis so this conversation is at an end. I continue mildly anxious but content and happy. Thank you all very much for your support through what has been a most uncomfortable week..
George