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rj69947
rj69947

Hi there I am a male almost 48 gay and have sevral medical conditions fibromyalgia etc etc then nov last year over night started bleeding gp arranged cons appt at hosp but for 10 wks away another gp rushed it through dec last yr 2014 had flex sig and 8 biopcies painful or what 24hrs of ouch!  thinking cancer I was in a state so after chasing results at hosp cons sec said no cancer but Proctitis! + they will make appt to see me in clinic!  Then no one tells me gp were sent script for pentasa supps 1g nocte! good job I am a nurse so started them 9 days ago thought was getting a bit better for 2 days then today day 9 back to same old.

I have had no advice/support etc for this, and after my flex sig done by a nurse, have not even seen cons they say will be seen in due course and to continue use of supps till seen in clinic.

Can I just thank ALL of you for all the posts I know they are 1yr old BUT for me I feel I am not alone!  I almost cried when I read them and rather than feeling s**t scared etc I felt phew other folk men/women etc in the same boat.  Not sure where/what will come my way but these posts have been so helpful and supportive reading.  Many thanks R x 

2 likes, 6 replies

6 Replies

  • jon13689
    jon13689 rj69947

    Posted

    Hi RJ

          My name is Jon and my wife Marie is suffering with UC having read what your going through, I would advise you to book an appointment with the consultant that deals with your case, this can be arranged through the PALS service at the hospital.

    They would tell you all the facts and advice that you need to know.

    I wish you all the best of luck with this and would urge you to keep us informed of your progress on this.

                           Thank you

                                Jon and Marie 13689

    • rj69947
      rj69947 jon13689

      Posted

      Hi Jon

      many thanks for this I hope your wife is in remission and keeps well and will keep you informed Cheers R smile

    • jon13689
      jon13689 rj69947

      Posted

      Hi RJ

           Thanks for your reply Marie is finding things a bit easier due to her medication but not fully settled yet.

              Yes please keep in touch cheers

                                                Jon and Marie 13689

  • millie1986
    millie1986 rj69947

    Posted

    Hello!! And welcome! My post was only posted just at the start of this year 2015 so please read through all the threads!!smile

    I am so sorry to hear your one of the unlucky ones that has been diagnosed! I, myself have also been diagnosed with UC but I had convinced myself it was the dreaded cancer! In hindsight I am delighted with the result I was given. Ok it's not the best but everyone who has had this can appreciate we all do think the worst and I'm always telling myself it could be much worse!

    Come on here and any questions you have there is. Always someone to help you or advice! As one of my commenters told me it's always the negative of UC that people are reading

    It's definitely mentally challenging having this and you need to focus on your mind state too.. That's more than half the battle!

    I hope you are not in too much pain and bot bleeding too bad! Take care

    • rj69947
      rj69947 millie1986

      Posted

      Hi Millie

      thanks for this, it sure is good to have others in the same boat who understand what it's like smile  I agree a good mind state does wonders, I hope your doing well, hugs R x

    • millie1986
      millie1986 rj69947

      Posted

      I think the thing is a lot of people DONT understand it!

      Sounds like you've been through the mill but you must talk to someone.. Keeping this to yourself and not having anyone won't do you any good and can make the symptoms worse. As I have said in previous posts I'm sooo lucky I don't suffer from aloy of pain or else I'd have been to the doctor sooner! However from what could have been mild UC is now Moderate and I've only myself I blame!

      I hope your feeling better reading and I'll alway be here xx

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