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Belldrum
Belldrum

Hi Everyone,

I was finally diagnosed with Fibro in Nov last year & was so relieved to have a diagnosis after 18 months of complete hell - my gp was useless as blamed everything, and still does, on my back injury( I have torn discs in my lower back due to heavy lifting at work). 

I am now attending a pain clinic every 8 weeks and see a lovely consultant pharmacist who believes very much that Fibro exists and is trying to help me with my pain control; however it is the fatigue that cripples me and this is where my friends and family don't understand this syndrome. I've read a few posts on here before adding something and am relieved to find that a lot of us have similar experiences. Most days I am made to feel like a hypochondriac despite managing to drag myself out of bed and go to work. My boss has been helpful in that she allows me to complete my weekly shifts over more days however I know she is a non-believer of Fibro and makes me feel very uncomfortable by way of her attitude towards Fibro. I do of course get the usual comments of "you look alright" but this is only through sheer determination not to let this syndrome beat me.

Anyway I could talk for hours about my symptoms - it's good to know that I will get a positive response on here as we are all going through the same hell. My guy at the pain clinic recommended coming onto a forum and I'm glad I've finally took that step.

Thankyou for reading my post - I'm glad I've now got somewhere to come and  discuss my Fibro.

Hope you're all 'well' today.

Take Care.xxx

1 like, 7 replies

7 Replies

  • kathleen1958
    kathleen1958 Belldrum

    Posted

    Have you seen the (Letter to a normal). Great to let others read it explains quite a lot to them about FM X
  • Bee70
    Bee70 Belldrum

    Posted

    Hi Belldrum

    Welcome, You are not alone and I feel that by joining this forum it gives all of us on here that extra bit of support we all need from time to time. Totally agree with you we all look well to others but they don't see the pains we carry everyday. Only way to tackle this is not to give into Fibro and try to get the most of your day. Taking a day at a time is usually the key to focus on. Enjoy youe moment of each day and don't worry about things that don't get done.  There is more to life than your daily chores, even if one was completed in a day that is perfect and if not try on another day.  Cognitive Behaviour Therapy really helped me in the process of mindfulness thinking.  I have been suffering with pains for over 20 years but only got diagnosed Aug 2014 with Fibro. Since joining this forum in March 2015, I have read many interesting facts from various people and it really feels good to know that I'm not alone.

    Gentle hugs and keep us informed of your progress. wink xx

  • woodbon
    woodbon Belldrum

    Posted

    I read your post and I am glad you have at last got the diagnosis and the Pain Clinic is being helpful, but sorry about your GP..Fatigue is also one of the symptoms I struggle with too.  I hope you can find a way of fitting your best times into the day without overdoing things, its such a temptation to go ahead and try and fit everything into a 'well' day, then suffer for it!

     I'm sorry about your boss too, but at least she is understanding enough to allow you time to try and cope.  Their is some free leafelts I've seen advertised that you can give or have sent to your boss, which tells them more about Fibro.  Your Pain Cliinic may know about them or someone else on this site, if you think it might help.She may be even more flexible and understanding if she gets to know more about Fibro.  

  • melanieb
    melanieb Belldrum

    Posted

    Hi first of all welcome I've found the site so helpful. I used to have the same problem no one believes as you can see pain or fatigue, my symptoms have flared up and I've had to leave work. I last worked in 2013. I admit the fatigue is just as crippling as the pain. I see my G.P regularly and must admit she believes in fibromyalgia and chronic fatigue as very much real, I also see a rheumatologist every 3 months and a pain management specialist every 3 months. I've had both conditions since 2011 and you do get good days and bad. Everyone on here are so friendly and helpful so always ask and we will help.
  • bronwyn97278
    bronwyn97278 Belldrum

    Posted

    Welcome Belldrum;  it is very nice to have a new blogger.....and yes all will give you the space to vent, and to find ways of coping.   As some of us have found (I am thinking of one woman in particular who achieved what most of us did).....leave/get others in your life to read some (as there are too many for one person to read at one time) of the inputs that others have put on these sites re their Fibro, and they all come back with "well there are just too many people suffering with the same issues, for it not to exist".....one lady's husband has done a Complete turn around.....she thought there was no hope, and was really desperate, now says, he is over-concerned, and can't do enough to help her.....as the saying goes   "ignorance is bliss.....but knowledge is a godsend"....try leaving reading matter lying around/even maybe giving anyone who doesn't know where you are coming from, some printouts of Fibro and its' symptoms......I'm sorry if I'm all over the place today, but it is one of those days, too, where I had a bad night's sleep and feel "foggy".....rest my poor brain..wink....Bron
  • christine26761
    christine26761 Belldrum

    Posted

    Welcome Belldrum, hope you feeling better today, it's just so reassuring in the knowledge that we are not and never will be alone...you will find much knowledge on here and lots of empathy..loads of laughs..it's soo interesting too because we live all over  the world . Have a really lovely day, be blessed..and remember getting stressed over anything is the worst thing you could ever do with Fibro...:-) xxxrazz.
  • tiff74
    tiff74 Belldrum

    Posted

    Its an attitude you have to come to terms with ( can't see anything so must be making it up for attention somethingwith all had to deal with, iI'm lucky my family are very helpful and are usually telling me to slow down and rest or will blow myself put next day,

    I have had to put dignity to one side for holiday this year and invest in a wheelchair, I'm determined to male sure my youngest has a great time, so I need to make sure I rest (chair it is).

    I'm glad you c on hear to chat I've only been on a week myself and feel so much better being able to share and help. Nice to now you not alone all best tiff x

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