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Minniemin
Minniemin

I currently have intense itching which is worse during the night. It sometimes feels like a crawling sensation and I’m wondering if that is typical of LS or rather a fungal condition.

 I have tried the Clob once before but stopped it as it seemed to be too strong. Maybe I applied too much. I’m tempted to try it again but would  like to know how long it usually takes to make a difference.

Any advice most welcome.

Thanks

0 likes, 23 replies

23 Replies

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  • Rowley1
    Rowley1 Minniemin

    Posted

    My consultant put me on every night for a month then every other night for a month then twice weekly for the next few months. Hopefully it will be under control by then.

    Good luck x

  • sarb73328
    sarb73328 Minniemin

    Posted

    Hi Minniemin (like that name!)

    I would say crawling sensation is a good description of sensation with LS. Sometimes I liken it to fizzing or buzzing (and not in a pleasant way). Definitely try clob again or ask your doctor for a weaker steroid cream? I think the time it takes to work is different from person to person. Also lots of moisturizing, coconut oil or Emuaid help me.

    Good luck. - Sarb

  • elle2424
    elle2424 Minniemin

    Posted

    I would try the clob again. My doc had me on it twice a day for a month and then twice weekly for maintenance. As I recall after the first week it had killed a lot of my symptoms (including severe itchiness) 

    Now I’m at the control dose and I don’t always find it’s eniugh but I don’t want to over use it. But my suggestion would be use small amounts of the clob, apply it with a mirror so you can get the exact right area, and try to gently rub it in well. 

    • Rowley1
      Rowley1 elle2424

      Posted

      My new Consultant told me to ignore what I had been told before about putting only a tiny amount on and to slather it on (dermovate) and I have a big improvement.
    • Minniemin
      Minniemin Rowley1

      Posted

      Ok I'll check dermovate out when I got for the biopsy. I'm hoping that procedure doesn't add insult to injury. 

  • arlee
    arlee Minniemin

    Posted

    Did u have a biopsy to confirm LS?  I didn’t. My dr said  it was my architecture that was changing. Now she tells me she’s not convinced that it is. Too confusing. 

    I tested positive for yeast last week - it was itchy and burning As well 

    Why did your dr prescribe clob. I know  itching is a symptom of LS and there are others - white patches. Thinning papery skin.  U have to use a pea size amount of the clob and rub it in it very well. 

    U should go back to your doctor to make sure it’s not yeast

    Itching is very annoying and scratching makes it worse. 

    • Minniemin
      Minniemin arlee

      Posted

      I was told it was LS albeit visually by the hospital specialist. There is no whitening but getting itchy flare ups and one Labia Majora has fused.

      I go for a biopsy next month, it will be good to know if it is definitely LS or not. My Dr said this flare up was thrush, but I have my doubts.

      Thank you to all who have offered advice I have taken your ideas onboard. It is so good to know you have a sounding board when you’re at a loss to know what to do next.

       

    • arlee
      arlee Minniemin

      Posted

      I think a biopsy is good to have. My dr also said visually from change in architecture. No white patches  some itching and plenty of burning. 

      I tested positive last week for yeast. I did the 7 days of internal cream 

      When I was leaving the drs office she said I’m not firmly convinced it’s LS 

      That is maddening to me. So I’m going back - again.  

    • Minniemin
      Minniemin arlee

      Posted

      I hear you loud & clear. I have the same dilemma with Dr not believing it could be LS. She was so convinced it’s yeast she didn’t take a swab. The Miconazole didn’t sort it hence trying a Clob. 

      Life was pretty straight forward before this carry on!,

    • Guppy007
      Guppy007 Minniemin

      Posted

      Hi there, I just wanted to say that for some  they will get a white discharge that looks almost exactly like milk when they are flaring with LS.  It is not, however, the same type of discharge that one would get with thrush.  This i think is why doctors get it all wrong..as soon as the white discharge is mentioned they immediately start scribbling THRUSH on their pads!
    • Minniemin
      Minniemin Guppy007

      Posted

      You're right there. I've no discharge either. I had the best nights sleep last night in3 weeks.  My Clob says apply sparingly daily while needed then two weekly for maintenance. Does that mean once a day??  Morning & night would be better for me right now. 

    • Guppy007
      Guppy007 Minniemin

      Posted

      Hi there, when you are flaring some docs advise using the Clob twice a day to start off with and then reducing it to once a day, and then every other day and so on..
    • arlee
      arlee Minniemin

      Posted

      Did you have a biopsy. I didn’t because my dr saud im already irritated and didn’t want to worse. It. She first said LS because of architectural change. I don’t have white patches. 

      We want our straightforward life back 

      Things were much better before all this mess 

    • Rowley1
      Rowley1 Guppy007

      Posted

      My Dr said only at night but to use quite a lot as small amounts were not helping me. This is working for me.
    • Guppy007
      Guppy007 Rowley1

      Posted

      Hi Rowley, the recommended dose is a pearl-sized amount, used twice a day whilst flaring and then down to once a day, then alternate days and so on until your out of a flare. I wouldn't use a lot constantly and every day to be honest.  I understand that its working for you but as soon as your symptoms dissipate I would cut back, because it is a strong medicine..have you looked at the experiment with borax thread?  I think that once you can get your symptoms under control you might want to see if you can control it with different methods and just use the clob for emergencies.

    • Rowley1
      Rowley1 Guppy007

      Posted

      Hi Guppy007 My new Consultant says that LS patches thicken the skin so using plenty of Clob thins and softens and this is working great for me.
    • Rowley1
      Rowley1

      Posted

      ps Guppy007 i am now every other day for a month then twice a week for 2months then I go see my consultant again.

      This is my third consultant and the first 2 were useless. My new one knows his stuff and was able to answer all my questions and I'm happy to follow his instructions.

    • Guppy007
      Guppy007 Rowley1

      Posted

      Hi Rowlye, yes your consultant is correct in that LS thickens the skin..I'm glad you have found someone that sounds like he knows something about LS....he is probably going to eventually get the clob down to once a week by the sound of how you are tapering.

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