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pauluk60

new to this dicussion artritis

just had a VERY BAD flare up no idea what caused it knees and leg pain tremendous but hopefully easing now but my legs feel as i have to learn to walk again i have so many?????s to ask i would fill 10 pages so i am asking is anybody having same problem and what is my prognosis  4 walls ?  wheelchair ? operation ? a trip to Lourdes sorry if i sound daft but this getting to much   do they have nhs  groups  

10 Replies

  • pauluk60

    Morning Paul, welcome to the forum (better by far than any other I have come across). 😀  If you have questions ask away, some of us have had to deal with this illness for many years, we can listen, advise, commiserate with you when necessary.

    The first thing is - don’t panic!  At first it seems it will be the end of how we used to live.  That’s not true.  Find an excersise patern that suits you - Arthritis Uk has an excercise sheet to download.  Walk as far as you can - even if it is only 10 minutes, but don’t forget it’s also 10 minutes to walk back!!  Eat sensibly, others will be along to advise about that.

    Good luck.

     

    • constance.de

      thanks for reply Constance i have had arthritis some while 10/15 years what a grind but puns aside this flare up as they call was/is premier division pain and ache subsiding but left legs very weak weak so now worried where i am not going wife not coping well with me shes not got it that when i say i can't means I CAN'T SHE'S ONLY SMALL and i am 25 st i want to fight it's closing  me in i think ops out ?too big also had a lot of probs with cellulitis paul sat in chair looking out  c us all

  • pauluk60

    My mom was suffering from exactly the same problem but now she is fine. I would suggest you to take special care of yourself. Make sure to get the proper diet and take calcium rich diet. I also recommend you to wear a knee brace that helps you to intact your knee. 

    • nataliar

      hi nataller  thanks for advice but if you see these legs i think brace is a non option also other probs with leg water odema since posting i have a big flare up went on for over week ouch!!!!!!!!!!!! have asked to see specialist again for checks again for inflammatory arthritis absolutely racked up with this so will see what they say

       

  • pauluk60

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  • pauluk60

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  • pauluk60

    Hey

    I have suffered arthritis for 3 year. I know what the pain is like in knee's and swelling. I have had 6 operations in these 3 years to try and lesser the pain. I would say 4 out of the 6 surgeries l have had have majorly helped but the other 2 have left me with residual pain but l have not given up. I was a normal size 42 year old when it started and because of my arthritis l have gained a lot of weight. I know this is not helping my situation but l have even cut what l eat a day to the minimum. My body just cant cope with exercise. I try and never give up to fight through the pain and hope one day l will not be as much of a burden to my husband. He does not see it as a burden and does everything he can to help me. Although l try to do most things myself. There was a time l thought there was no coming back from this but at 45 l decided l am not giving up. I hope to get a bit of my life back and freedom to move about without as much pain. I hope this happens. So l think you have to find out the issue or have you already? And figure out if you want to help yourself and your partner to get through it. It's hard l know and l gave up for a long time but my head became clear and l know l must try for however long l have left to live. If you need any advice on knee replacements l can help l have had both mine done do feel free to ask anything.

    Laura

    • lors23

      hi lors hoping you having a good day i am the same with exercise scared if i do to much will make matters worse today i feel great no grate grind crunch when standing balance ok etc but doesn't it make you confused when nearly everyday different and doc fob me off  when i say something else going on with me       any ways got another referral to rheumy i think i was prejudged last time  no bloods or xrays taken said just osteo arthritis   will stand my ground this time but what will they do another painkiller no thanks no your not giving up its when you get a bad flare its knocks the ---- out of you head on floor dont speak real grind but WHEN IT LIFTS 100 times better its just when you get them close together or last a long time ugh horrible sos gone on to much but like you i want fight it but to do that you got understand it and theirs so many things that go wrong  sunday dinner near ready oh dear yorkies roast b/p GRAVY Veg a small plate spoils it     c  u lors

  • pauluk60

    Your welcome and l know your. I had bother with knee's a long time even when l was in my 20's l can remember 1 used to feel as if it came out of place a lot and l ended up on the floor in so much pain. I was always afraid of it happening. I was so young and fit to that it scared me. Then as l got older the grinding started in both knees but l started off with severe pain in my groin. I though it was just a pulled mucsle or ligament. I had just turned 42 and was a walker. My husband and l enjoyed walking as exercise so we would do a walk everynight for miles. That stopped. I went to doctor and he said it was just a muscle and sent me away with painkillers. It never got better just worse so l returned and was sent for xrays. What they told me the next week shocked me as l was not expecting it. I had to have 2 hips replaced as l has Osteoarthritis. I was so upset as l thought it was odd being so young. But it was not until l joined this forum that l realised l was not alone. This forum helped me through. I have had both knee's replaced now to. I would say it helped and 1 knee is brilliant but the other is not so great. Its not strong. It gives me a lot of residual pain. I dont think it will ever be any better but l can't say that for sure as l have not exercised very much.

    Good luck

    Laura

    • lors23

      hi lors all i can is wow you been through a lot you explained exactly  my knees AND THE FEELINGS you get    i was walking along landing and for no reason a bone in foot cracked  not broke but SORE  don't fancy op but last flare was bad   some days nothing well a LOT better but bad days seem to be taking over   they don't seem to you any hope of anything new   and i wish they would stop going on about exercise i was a walker but same as your self cant would cause more probs if i tried   well time for tabs c u lors

    • pauluk60

      I think you have to get it seen to my friend as the longer you leave it the worse it will get. I would get some xrays done if you can and find out exactly whats going on. It may be that you need to face surgery in the future as l know if l did not l would be in a wheelchair now. I am not far off the state of being that way. I can walk about the lenth of a supermarket but l struggle and everyone can clearly see l am parcially disabled. I can still drive but only go out once a week. I spend most of time at home. I am currently trying to come of pain medication and having a hard time. But l have to try as l have been on them 3 years straight. I am not sure what country you live or how your medical system works but l hope you get the oppertunity to get help as don't keep suffering it ends up unbearable.

      See ya pauluk

    • lors23

      hi lors thanks for advice THE WHEELCHAIR SCARES THE LIFE OUT OF ME  SURGERY RUN A MILE    so not there yet BUT HAD BAD FLARE UP 2/3  WEEK well head was on could not get out chair looking out of window at bird feeder it was a bit serious to me    i am in uk LORS what you said about supermarket is me  but luckily most big chains provide scooter which have basket at front so get a bit of independence there which would be good for you   1 dont think i would get round big supermarket now i have been xrayed when i first got it but when i ask for rheumatoid i think my own doctor must have given his opinion and they went with his diagnosis cause they only did physical test  but have more or less begged for further test so thats where i am now  i hope you get off painkillers i try not to take them but sometimes theres a need    c u lors

       

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