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I have been ill since before Xmas. Then Xmas day has a suspected tia now to be told it was a hemiplegic migraine and that I have to see a specialist about my thyroid. My levels are

TSH 0.004

T3 21

T4 30.9

I don't know what to do next I have also got typical thyroid eye disease which doctors were treating as an allergy.

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  • Posted

    Hi, my Graves has just come back for the third time and my levels are very similar to yours, only my TSH doesn't register at all.  Ask your GP to speak to the consultant while you are waiting for an appointment and you can start on meds that will really help.  I also suggest you take Acetyl L-carnitine that will help raise the TSH. 

    I've was diagnosed with Graves in 2009 and it keeps returning.  I am going to have RAI.  It's easier to control with thyroxine than with supressing drugs. 

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    • Posted

      I suggested to the Dr about graves he said don't be ridiculous I've been off work since Xmas and start a new job end of march but still feel dreadful my pulse is 133 and 106 resting Im breathless all the time no energy bad anxiety I have all classic symptoms just can't wait to see specialist Maybe get some relief from my symptoms
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  • Posted

    Hi, I'm sure you know this but get regular blood tests done and follow up with an endocrinologist or gp....try to get your thyroid stable first before u decide you need if any further treatment is needed but the best advice I can give you is: if your a smoker, you need to give up. Smoking is really bad if you have eye thyroid disease. You need to get yourself to an eye hospital as a matter of urgency and again get checked regularly. I have thyroid eye disease and it is a total nightmare. You can end up with constant double vision, which depending on your career could be life changing.
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    • Posted

      Thanks for advice. I just waiting now to see specialist because of my levels. This has been going on for a few months now. I went to optician and had really high pressure he wrote to my GP and he just said it was an allergy. I had to demand thyroid tests. I'm just doing research online now until I get my appointment.
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