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louisa55738
louisa55738

i have been suffering from TN for years on and off, but have been suffering for 6 months this time and have been formally diagnosed again after a long period of remission. I am on Gabapentin now, as the Tegtatol made me so sleepy and fuzzy headed it was adding to my inability to run my business. I am now suffering regular bouts of sever pain with bad pain in between. I'm seeing my dr yet again on Tuesday would you recommend me asking to be refrred to a neuropathic specialist? I am seeing a chiropractor too but this is causing me even more intense pain. All advice recommended! 

 

1 like, 6 replies

6 Replies

  • Windy338
    Windy338 louisa55738

    Posted

    Hi Louisa, Just from what I read of your description my advice would be to see a neurologist.  You could probably increase the dosage of Gabapentin and maybe combine it with another Med.   If you have Typical TN - the electric shock pains - then there are surgeries to deal with this if the meds do not work and then you would see a neurosurgeon.  I had Balloon Compression which is an out-patient surgery and fairly simple to do which worked immediately.  It is usually not permament but can be repeated after several years

    .  Good luck!!  

     

    • louisa55738
      louisa55738 Windy338

      Posted

      Hi Windy thank you for your reply that gives me hope. I will push to see a neurologist as the drugs are giving very little relief. Thank you again. 
    • Windy338
      Windy338 louisa55738

      Posted

      You are very welcome.  Ask me again about TN if you want my thoughts.  I was diagnosed 4 years ago so I can at least tell you what I have read or experienced.  It is very rare that solutions to this problem are not eventually found for people with this condition.
    • louisa55738
      louisa55738 Windy338

      Posted

      I was first diagnosed about 6 years ago, but it went off and then didn't re occur until late last year, I think it was a descale at the dentist that triggered this bout. I was experiencing days without pain when it first reoccurred, but the last 3 to 4 months it has been constant and the pain level is increasing despite the Gabapentin. I intend to tell my GP that I want a referral to a neurologist when I see him Tuesday. It is just good knowing there are others out there who have been through the same thing and found a treatment that works for them.
  • Valkyrie
    Valkyrie louisa55738

    Posted

    I agree with Windy. Seeing a Neurologist is essential as they have more knowledge of the drugs and other information which you need
    • louisa55738
      louisa55738 Valkyrie

      Posted

      Thank you Valkrie. I intend to tell my GP that I want a referral, when I see him Tuesday. It is just good knowing there are others out there who have been through the same thing
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