New to Vertigo / BPPV : which ear?

Which would be great, if they would see me. No help in the ER. My followup appointment with an ENT was scheduled a month from now. I had to beg them to get it moved up to next week.

So, I'm on my own till then.

Not knowing which ear is effected and doing epely can make it worse. Your primary can sometimes get you into a ENT faster. Mine did. I couldnt get a app for 3 months even begging. Primary got me in in 3 days. You will most likely end up in PT anyways. Primary can get you into them fast as well. They can tell you in a couple minutes what ear is causing it. Get you started on treatment. ENT will probably tell you PT is a start. Schedule you for VNG testing. Hearing test. ( Which is more than just hearing. Tells them as lot) . Results from those will decide if you need to see neurologist. Where i am now. Go to primary tuesday to get referal to a neurologist.

I don't seem to have any prefernce for a better/worse side.

In fact, I experience virtually no increeased dizziness when performing the Epley Maneuver, either side, any position, including liying down on the floor. The time when I notice the instabiltiy is when I stand up and walk. 

Yeah, he saw the jittery eyes. It's the rest of the sympoms that seem off. I guess every patient is unique.

Dizziness in bed is minimal and does not favour a side. It's standing and walking that gets me.

 

I have rolled over in my sleep and dreamed i was dizzy. Woke me up and i was dizzy

Lol. Its hard but you do have to learn to sit up slow. Wait a minute or so before standing to.

I have BPPV in my left ear, it's very pronounced when I roll over.  I also have MAV.  I thought the two were one thing, BPPV until the consultant told me that my balance problems were due to MAV.  Now I know the difference and take medication for MAV (silent migraines) which has made a world of difference. 

I changed the light switch in my bedroom to a dimmer switch. When its off it has a halo light around it. Like a night light. Gives me something to focus on when i roll over and get dizzy. Lol.

I had a tendency of jumping out of bed, those days are gone.  Now it's a slow rise and turn outwards.  When this first started I swung myself out of bed as usual and fell straight to the floor. I crawled around for a while until i got some sense of balance back.

I had a therapist years ago was awesome. She has it. So when i told her what i was feeling she understood. She said most people have one real bad episode. The other episodes wont get that bad. Her first bad one she said she sat on the floor and screamed. Her husband bought a huge tv for superbowl parties. She cant even go in that room when its on. It bothers her so much. TV and comp bother me bad. Phone not so bad.

I agree that all other episodes have never been as bad as that particular one, I had to take a month off work, couldn't walk through a door without gripping onto the side of it, staggered about like the drunken sailor, fell over when i went from light to dark and basically, felt spaced out and couldn't focus my eyes properly.  Everything seemed strange. I  thought I had something much more serious wrong with me like MS.

Since then I am told that my brain has been retraining itself and has plasticity so that it can adapt to the changes i need to make.  I have also cut out certain food that cause the silent migraines and found these to be mostly cheese and chocolate. I was told by the consultant that as it took so long to be diagnosed it would take longer to heal and i have been on medication for over a year which i am now being weaned off.

I am pretty much asymptomatic in bed. Sure, a little disorientation if I roll over, but meh. In the morning I'm fine getting out of bed. Until the moment I'm standing. Then I tend to stumble. In fact, my symptoms are almost only when I'm standing and walking. Lucky for me I sit for a living and can work from home.

I went for a drive today to test my abilities. It is exactly like driving wth a buzz. l probably wouldn't handle an emergency with my normal perceptive ability.

Were you given any medicine?

Thats what gets me. I see a huge list of meds they give yall. They havent tryed any of them on me. Less its cause i live in the US??

Depending on how much you complain you'll get a pill for every condition. One to turn your head left, one to turn your head right, one for the dizziness, one for the vertigo and one for the spaciness, lol.

You must not complain much, lol.

Since they clamped down on controlled substances in our state. And made almost everything a controled substace. Docs are afraid to write a script for anything. I get randomly drug and alcohol tested for a 2mg diazepam. Script is 5 bux. Test is 1300 bux. Plus office visit 200 bux. Even they think its stupid. For 1500 bux if i wanted to abuse drugs, i could get better than a 2 mg diazepam. I am trying to get the room to stop spinning. Why take something to make it spin faster. Lol. In the past couple years i had several docs retire cause of the crap laws they pasted. My ENT wouldnt write me a script, a note for work, or even set up my app with neurologist. He told me have my primary do it. The less hes involved the safer he feels. Most have the same attitude. Its bad.

Ya. 48mg Betahistine daily.

I took it for 6 days. No idea if it's doing anything, so I've stopped taking it for a bit to see if there's any backsliding. So far, no.

I read that it's essentially uber-Gravol, which means it's doing nothing for my condition, just damping the vertigo.

Worse, apparently, taking it tends to extend the time required to compensate/learn to cope with BPPV.

Here in 'We The North' it's not so bad.

Lol

You would think the pharmaceutical industry would be happy to have people on controlled substances. I worked for a Neurologist years ago, and he rarely ever gave out an rx for a controlled substance unless the patient had parkinson's or ALS. Where ever you're at, it sounds as if they're coming down on the doctors for giving out those rx's.

Live in the US. Upstate NY. Can see it from there point of veiw as well. Kids abusing stuff and people selling there scripts is out of control. But i get tested to make sure i am not on anything illegal or not prescribed to me. As well as to make sure i am taking them. They even test me for alcohol cause if i drink and take them, its a bad combination. And if i do it and die, doc can be held responsible. Even docs say it should be on a case by case basis. But its out of there control. Then theres the rule most go by. Everybody lies. I have never tested dirty for anything. Never will. Have no desire to drink or do drugs.

Now they want to limit peoples pain meds scripts to 1 week. So you have to go see the doc every week to get it refilled. Thats nuts. Docs are fighting it. They have a full schedule now. That will make it impossible to get a app with them.

I'm not sure what medical report you read, but I just read the efficacy of the drug and it's highly recommended for acute Meniere's disease.

That sounds like a bit too much. Every 30 days I can understand but every week? Yet, I don't understand why you would be tested for randomized drugs & alcohol unless there's doubt that you're clean and sober?

How they make up the money lost on obamacare. I have never done drugs or had a substance problem. Used to get a beer after work when i was a kid waiting for my mom to pick me up from work. But that was just after highschool before i got my first car. Lol. Graduated in 1981. Lol

Betahistine? For Meniere's? If you say so.

I don't have Meniere's so...

I was fine with MAV until I put my feet on the floor to walk, driving was mostly OK as my feet were off the floor, but my perception of space between me and another was affected.  Sometimes it felt as though everything moving around me was going faster or slower or moving whilst stationary.  It wasn't safe for me to drive at one point so I stopped and took a month off work becasue i drive as a community nurse.

Our feet send impulses I guess to our brain and are part of our balance centre along with our ears and eyes etc.,