New without a clue!
Posted , 9 users are following.
Hi there. I have recently been diagnosed with fibromyalgia. For years I have suffered pain in my wrists but this past year I've had aching pains in my wrists, elbows and shoulders. My lower back aches and travels up my spine. I am constantly exhausted. I sleep well but still feel so tired all day. I have had IBS from a young age also. I feel like everyone thinks I'm a hypochondriac. I'm 28. Have a pretty strenuous job. I've been prescribed paroxetine 30mg (I also suffer anxiety/stress) I do drink a lot (1/2 bottle wine per night. More at weekend) I've recently been advised to stop taking my regular dose of 2 paracetamol/codeine per day as the dr feels I'm becoming dependant and now I am in so much pain. My only relief was my codeine in the morning and wine at night. I feel so stressed out and no one really understands. Sorry for going on but I don't know who to talk to 😞 just looking for advice or confirmation that this is "normal" Thanks x
1 like, 15 replies
grahammolyneux Estrella
Posted
your definetly not alone with those feelings, I hurt my neck and then bang 12 months on I have just been diagnosed with Fibro. I struggle a lot with sleep but might take a leaf out of your book and start drinking again as I haven't drank for over a year now.
It is difficult to understand for us nevermind other people.
I am sure you will get your answers on here, I am just about start a swimming session in a hydro pool which is kept at 31 degrees C' which is supposed to help a lot.
I hope you get your answers it has definetly helped me to start to understand so stay on here and listen and share your eperinces'
JulieBadger grahammolyneux
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shirley99502 Estrella
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JulieBadger shirley99502
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Mine's the same with my IBS, I get acute stomache pain just before it's about to start. If I ignore it, it'll get me back a lot worse within a short period of time. Sometimes I know what's triggered it (sudden stress) other times I haven't a clue. It ain't no winter bug!!!
shirley99502 JulieBadger
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JulieBadger shirley99502
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I phoned my surgery and asked if there was a doctor who specialised in Fibro & ME (I have both). Cos I didn't feel like the doctor I was seeing had a specilism in it. It is a specialist area which a doctor has had to choose to research into is understand it and the best ways of helping us. There was a different doctor in my practice who was specialised in that type of thing. I now see her every 3 weeks for us to keep altering the meds.
Swop doctors I advise - yours doesn't seem to be listening to you xx
grahammolyneux JulieBadger
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JulieBadger grahammolyneux
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JulieBadger Estrella
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Amiliptreyne (spelt like that) is very good. Some CBT stress talking might help you out with handling your stress issues (they helped me). I have an Orthopaedic mattress and massage might be nice for you to relieve some of the stress and relax the muscles.
My biggest advice is to cut down the wine, cut down on those medicines. Get started on the correct medicines for chronic pain and seriously start reducing the stress if you can. Stress does make the pain and tiredness worse & definately the IBS! You are 'normal' but you're coping with the pain in not the best why. You're trying to numb yourself I think.
I'm not preaching, I'm trying to help. You're current numbing affecting methods will lose their affect and you'll have to keep on increasing them to get the affect.
Talking on this forum is very helpful. We're a mixed age lot. I'm 36 and have suffered since I was at least 14. xx
tiswas24537 Estrella
Posted
accupunture works well for my i b s , so does reflexolgy . and of course so does using a self hypnoise cd for ibs . or a combination .
some people can drink with FM some like myself cant with out making myself even worse more exshusted , and my i b s also worsens .also gives me much more pain .
i use magneisum oil applied to my legs arms and trunk that helps with the pain, and take supplements . never had pharm drugs
. the worst part for me is when i get pain in my feet its torture , i can hardly put them to the floor ,but since iv found what works for me ,touch wood iv not had an episode . its all trial and erorr . what works for some of us dosent work for otheres
dont rely on your gp to have all the answers he hasnt, he has only suggestions . do some internet searching for alternative approachs, and try to take the time to try some that make sense, i find the supplement NANO GOLD works well as a supplement and helps with the fatigue . to.
brenda59210 Estrella
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Codeine packets have been marked up as for 3 days use only. You may be in withdrawal from the codeine and your body may be demanding more.
Also, I would go easy on anything acidic, sauces, oranges etc
Best wishes
Brenda
juie71916 Estrella
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tiswas24537 juie71916
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tianx
Flowerlady Estrella
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pamela91491 Estrella
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