1. Community
  2. Women's health
  3. Lichen Sclerosus

New Zealand Paitent

Posted , 4 users are following.

Jess1612
Jess1612

Hi I am from NZ and wondering if there are many on this forum from NZ also.  If so does anyone know of a specialist in LS here?  I live in South Island but would be prepared to travel.  I have been to 3 specialists in 2 regions but none seem very experienced with LS and I have had conflicting diagnosis.  Thank you if you can help. 

0 likes, 9 replies

9 Replies

  • lynne1945
    lynne1945 Jess1612

    Posted

    Hi Jess

    I am from NZ and diagnosed a year ago. I am in Tauranga and have dealt with a sympathetic doctor but who has not seen a patient with LS before so referred me to a gynaecologist who gave me Clobetasol and oestrogen but no clear directions how/when or where to apply or any real support. The support I have had comes from these forums, I've learned a lot in a short time. 

    But, like you I want to discuss my treatments and options with someone specialised so have found a clinic in Hamilton which deals only with skin conditions such as dermatitis and two doctors who specialise with vulval health within the clinic.   I had to have a referral from my doctor which she gladly gave. It's an hour away but that's nothing to get this business addressed. I know there is also another specialist named Elizabeth Baird in Auckland who treats a woman who posts on another LS site (highly recommended by her) and I would have gone to her, but Hamilton is closer. 

    I presume you have searched online for a specialist in your region, it seems incredible that there is nobody in Chch. Possibly Wellington? Good luck with your search.

    I am going to the Tristram clinic in two weeks and am hopeful for some answers to my concerns.  I searched online for info then rang them and made sure they dealt with LS and have a half hour appointment so obviously quite comprehensive and thorough. Fingers crossed. 

    Wishing you well

    • Jess1612
      Jess1612 lynne1945

      Posted

      Hi Lynee thanks for the reply and information.  I would be very keen to hear how you get on and if you felt it was worth the visit.  I wish you all and hope you get some help.  Thanks😀
  • lynne1945
    lynne1945 Jess1612

    Posted

    Oooops, I meant the specialist in Auckland is highly recommended by her NOT the other LS site! 
  • lenep
    lenep Jess1612

    Posted

    Heya Jess, (and Lynn..smile

    Ive seen a gynaecologist in Wellingotn - she was weird. Confirmed the LS without even examining me - it took two seconds - and $200.

    My GP referred me to the Sexual Health Cininc in Wellingotn, have seen Jennifer Haywood. She seems good. Has prescribed me oestrogen and dermol and is looking into the testosterone for next time (3 months away). She has LS clients 1-2 /week, so its more common than I thought it was.

    I know ther's a couple of others form NZ here or on the other forum

    I

    • lynne1945
      lynne1945 lenep

      Posted

      Hey Lene, penny dropped who you are, only took me 4 days! Haha

      hope you're doing well these days and having fun in Wellington. 

      Only two weeks till my appointment, it's costing me $300 but will be worth it to get some questions I have answered, but to be seen by someone who deals with LS often is the key for me so fingers crossed. X

    • lenep
      lenep lynne1945

      Posted

      Oouch, -$300 - hope they give you coffee too!

      Let me know how  you get on, ok ?

       

  • vicky2000
    vicky2000 Jess1612

    Posted

    You're very lucky to have found a doctor who is knowledgeable. My luck tends to run with the other type. Two minutes and $200 and out the door. Good luck with your visits!
    • lenep
      lenep vicky2000

      Posted

      Don't give up though. Have your gp refer you I to a specialist. I don't know how bad your symptoms are out what you're using. But it's also for your own sanity to have a professional take you seriously.

      Good luck

    • vicky2000
      vicky2000 lenep

      Posted

      Thanks so much. A little encouragement goes a long way and everyone on this site has been great.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.