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laketha98062
laketha98062

I have been experiencing facial spasms for a while now.  I have just have had disc replacement in my neck and kinda thought that would eleviate this issue.  To my surprose the NeuroSurgeon told me that it wouldn't.  I have been reading all the threads here on the site.  I just received my first shipment of SPZM and Niacin.  I purchased the Ibuprofen earler.  I see such a difference in the dosage of each of these.  Can someone give me some direction on beginning my process.  Oh and my the way it is really aggravating when the spasms come when I am talking.  I am an Administrative Assistant and talk to people face to face and on the phone all day..  Thanks

0 likes, 3 replies

3 Replies

  • EricaBlair
    EricaBlair laketha98062

    Posted

    How long? Hfs isn't treatable by drugs...if hfs is your diagnosis is. There's only one 'cure' and that's surgery. I'm sure you will shortly get lots of replies. I suffered hfs for nearly 8 years before finally having surgery, which was my cure. The only thing that might help is to mask the facial spasms with Botox injections...if they work for you...they didn't for me. Wish you all the best on your journey with hfs.
  • ed_92085
    ed_92085 laketha98062

    Posted

    Hi LT98062

    Good to hear from you. Sorry though to learn that you are experiencing this problem. You don't say whether or not you've had a formal diagnosis of Hemifacial spasm, though it is clear from what you have written that your spasms are involuntary and interfere with your ability to interact "face to face" as you are required to do in your job. As you will know from reading the threads, this is a common story with HFS, and it sounds as though this is what you may indeed have- MRI is a way in which this can be established for sure. As EricaBlair helpfully points out, if you do have HFS, then surgery is the only proven way of curing it. Erica is on the money with her other comments too, and her suggestion that you may get others replying to your query is testiment to the well of understanding and support which is there for folks who are experiencing facial spasming. There are opportunities on facebook also for you to participate in mutally supportive dialogue with those affected by this condition. I think that there are others who are more competent in accessing these groups who may also light the way for you here

    Happy new year and here's wishing that 2015 is the year when you feel that you are really moving forward with your responses to this socially debilitating condition.

    All the best

    Ed

  • sue15958
    sue15958 laketha98062

    Posted

    Laketha,

    I don't know what "process" you are starting with medication, and I don't mean to be rude, but you are wasting your time and money.  See a reputable neurosurgeon, get an MRI, and duscuss surgery with your doctor.  MVD is the only procedure that will alleviate your spasm if you have HFS.  I had the surgery 11 weeks ago and am spasm-free.  Good luck and find a neurosurgeon who specializes in hemi-facial spasm.

    Sue

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