NEWBIE!

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Hi everyone.  Im new here and diagnosed in November with AMP on my left kidney.  I am due to have my first update scan in May.  REcently Ive had problems with my hip/buttock/loer back left hand side.  My osteopath thinks it could be the tumout sitting on the muscle causing pain down my hip and leg! Has anyone any ideas or thoughts please?? Thankyou. 

0 likes, 3 replies

3 Replies

  • Posted

    hi what is AMP
    • Posted

      Hi there! Sorry I dont know how to spell it!!!! Its Angiomypyloma or something(!) a benign tumor on the kidney.  Sorry Im totally ignorant sad
  • Posted

    Hi.  I've got angiomyolipomas, too, one on each kidney, although quite small at the moment.

    If it were me, I would definitely make sure that your doctor knows about the pain you've been having.  If you're in the UK, maybe ring his secretary?  They might be able to bring the scan forward.  How big were the tumours back in November?

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