newbie

Posted , 7 users are following.

hi everyone first time on this site and a little nervous,im a 51 year old male and was diagnosed maybe 4/5 weeks ago. i have my respitory appointment on thursday i guess i just want an idea of what questions i should be asking.

0 likes, 23 replies

23 Replies

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  • Posted

    Hi John,

    Blow the FEV, if the nurse had told me I wouldn't understand, there'd be hell to pay - what a cheek!

    FEV is something I've only very recently heard about but it made a huge difference to my understanding of what was happening to me - simply because I was able to 'spot where I was' on internet information - does that make sense?

    Next time, whoever you see, just say, 'What's my FEV1?' and write it down. lol if they don't answer, write down 'refused to tell me' - that'll make a difference, I'll bet! :D

    Great about the smoking - well done to you - have you gone cold turkey? It was the tablets that eventually worked for me.

    Stitch

  • Posted

    [quote:1487cf536d=\"Jacee\"]Hi John

    Just a note.

    1. The pneumonia vaccine is NOT a one of but will be offered every two years to most COPD patients, along with the annual influenza vaccine.

    2. I could not breathe with my bedroom temperature at 18 and suggest that this will vary enormously depending on the individual.

    Good luck with fighting the demon weed. It is not easy but it is so worthwhile. Try to stay strong and, if you do fall back, pick yourself up and give stopping another go. I'll be thinking about you. Good Luck

    Jacee

    x[/quote:1487cf536d]

    Hi Jacee ..........That's really interesting you are of the opinion that most COPD patients are offered the pneumonia vaccine every two years.

    I know quite a lot of people with COPD / emphysema (all having had COPD for 6+ years) and non that I know of have the pneumonia vaccine offered every two years.

    I'm interested to know more. I've heard in the US they have the vaccine more often but was not aware the it is becoming the norm in UK. I just assumed that the two were different vaccines.

    Also interested to know of others who are getting offered the pneumonia vaccine every two years???????????????

    I've had COPD emphysema for 6+ years myself and have had the pneumonia vaccine once. I will certainly enquire into this further.

    It could quite well be that certain people require a different vaccine which is offered every two years and others not so, we are all different and our own medical advisers prescribe our medicines accordingly.

    I would assume that most people with COPD in the UK will get the pneumonia vaccine as a one off and on occasion offered a 2nd one at a much later date, I guess this would very much depend on the individual patient though. I have for instance heard of someone getting the pneumonia vaccine at age 52 and again at age 75.

    But certainly I would not say you are wrong Jacee and appreciate that we both are of a different opinion and have totally different experiences, awareness of the pneumonia vaccine and its application.

    Wishing you a good weekend.

    V

  • Posted

    I have had COPD since 2006. I get the pnumonia vacine every 2 years.

    AAA

  • Posted

    fags have been cold turkey but actually easier than i thought i still want one though lol. once again i really appreciate all the feedback and help you guys are giving me im really glad i found site
  • Posted

    Happy Saturday John

    Keep up the good work :D

    I also went cold turkey when I gave up the fags, oranges, drinking plenty of water and trebor xtra strong mints were what I used during the process. I also went out for short walks a lot (minimum 3 x 10 min walks a day).

    Generally, I reckon any distraction you can think of is good at those moments when you think of wanting a fag.

    Well done for staying smoke free :D

    V

  • Posted

    [quote:729b60d8fd=\"Jacee\"]Hi John

    Just a note.

    1. The pneumonia vaccine is NOT a one of but will be offered every two years to most COPD patients, along with the annual influenza vaccine.

    2. I could not breathe with my bedroom temperature at 18 and suggest that this will vary enormously depending on the individual.

    Good luck with fighting the demon weed. It is not easy but it is so worthwhile. Try to stay strong and, if you do fall back, pick yourself up and give stopping another go. I'll be thinking about you. Good Luck

    Jacee

    x[/quote:729b60d8fd]

    Hi again Jacee

    I think we can all agree now re 'Pneumonia Vaccine' thread that some of us get told it is a one off vaccine and others get offered it every two years.

    It good to share information and experiences, gives us all a better understanding and I'm sure helps the newbies too. :ok:

    Take care

    V

  • Posted

    i still have a terrible cough anyone any ideas i got an inhaler from gp without seeing him [we spoke on phone] its called symbicort turbohaler i think it has steroids in it however its now done any good. im on my second bottle cough medicine but no use either its waking me up at night i seem to have a coughing fit after being asleeep for 2 hours im seeing doc again on monday thanks guys
  • Posted

    Hi John,

    I am told by my Doc that Symbicort is a preventative inhaler and not a reliever. You may need a reliever inhaler as well. Coughing through the night is not very nice and doesn't help your sleep. I dont know if your cough is a dry cough or if you have a lot of mucus but it is good that you are going to your Doc to get it checked out just in case you have an ongoing chest infection. I know that for me allergies give me a very annoying cough at night as well as an unproductive cough caused by COPD. Hope you get relief soon. God bless.

    Regards,

    Robert.

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