NEWBIE :) Graves Disease need some info.
Posted , 9 users are following.
Hi there,
I am new to this group but have been looking at some of the threads and decided I am going to post on here.
I have just got back from my consultation with my Endo for my Graves' disease.
I have had this now for 2 years and am currently on carbimizole 20mg.
We have now discussed that in 2 months time we need to make a decision whether I am to have the surgery or the radioactive iodine treatment.
So what I'm basically after is any body out there who have had this treatment and what your stories are.
I have a 2 year old son so the RI isn't my first choice but neither is the surgery.
I'm all very confused, worried and just fed up with it all to be honest.
Any help/advice would be great.
Thank you
X
1 like, 23 replies
linda187
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veronica122
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Bopeep
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scott15489
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linda187
Posted
For other thyroid diseases like Graves disease, the problem is not the thyroid, the problem is the immune system attacking the thyroid. What will it attack after you have removed the thyroid?
jane32290
Posted
Glad you are feeling better Scott and things seem to be working for you. I have to say though, as in my previous post, that it is not an abnormal organ that is removed/ treated with radiation(i.e. thyroid) but an organ that is being attacked by an abnormal immune system. I have read that it can be caused by an infection that the immune system fights off and starts to attack the thyroid too. I am holding off having RAI for as long as I can despite a doc trying to "bully" me into having it . A few years ago ( over 20 ) I had ulcerative colitis that was put down to my immune system and told was a chronic condition I would have all my life .Not had a repeat of this condition up to now. The point I am trying to make is that I could have been put on medication for those twenty years as it is I have not had to take any. It may just be that my immune system is doing the same thing to my thyroid now so do I really want to take the drastic action of killing/removing it? . Am on 5mg of carbimazole at the moment and go back to docs in three months . I hope my thyroid is back to normal then I really don't want RAI . So glad this forum exists where we can voice our thoughts and worries as docs just don't seem to listen . Good luck to you all .
fern12
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julia85396 becky84
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