NEWBIE :) Graves Disease need some info.

Posted , 9 users are following.

Hi there,

I am new to this group but have been looking at some of the threads and decided I am going to post on here.

I have just got back from my consultation with my Endo for my Graves' disease.

I have had this now for 2 years and am currently on carbimizole 20mg.

We have now discussed that in 2 months time we need to make a decision whether I am to have the surgery or the radioactive iodine treatment.

So what I'm basically after is any body out there who have had this treatment and what your stories are.

I have a 2 year old son so the RI isn't my first choice but neither is the surgery.

I'm all very confused, worried and just fed up with it all to be honest.

Any help/advice would be great.

Thank you

X

1 like, 23 replies

23 Replies

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  • Posted

    Thanks for the info Veronica. I bought some Ashwagandha on the week end and look forward to trying it. A friend of mine with Hashimoto's was on it. Her TSH was 20 when she started and has dropped to 13. She is now working with a Chinese Medicine doctor to heal her Hashimoto's.
  • Posted

    Awesome! Let's be in touch and share our results with everyone. Perhaps even a few individuals will be able to avoid invasive, potentially negative, procedures by utilizing these powerful, beneficial herbs.
  • Posted

    I do thank you to you all on this forum for this informaition it helps a lot and we should support each other has much has possible we need to no has much has we can about the thyroid this is my 7 day of riodioactive thyroid pill I have felt very sick but not sick got some tablets to help to control the sickness I have also got graves I don't understand we're graves comes into it because no one has not told me a lot about it many thanks to you al
  • Posted

    FYI, it's now almost a month following my thyroidectomy, and I am running 16 miles at a time. Faster than I was before my surgery. My heart rate is back to normal. All my symptoms are gone. I feel awesome. It didn't take too long to get the meds to the correct level. I'll be back to running marathons again (I'm signed up for my next one in October). I'm not saying that herbals and immune boosting holistic options are the wrong way to go. But, modern medicine should not be dismissed. There's a reason Maca Root, Ashwagandha, and Elderberry were used back in the days of the early Peruvians. It's because they did not have the ability to go in and remove an abnormal organ like we do in modern medicine, and then take a pill that would replace the hormone that the faulty organ was supposed to be producing. Choose wisely. It's your body.
  • Posted

    I'm glad it worked for you but I have heard from many many people who have had RAI or surgery and do not feel normal on synthetic T4 replacement. My cousin is one of them. She had thyroid cancer and had her thyroid removed and does not feel normal.

    For other thyroid diseases like Graves disease, the problem is not the thyroid, the problem is the immune system attacking the thyroid. What will it attack after you have removed the thyroid?

  • Posted

    Hi All

    Glad you are feeling better Scott and things seem to be working for you. I have to say though, as in my previous post, that it is not an abnormal organ that is removed/ treated with radiation(i.e. thyroid) but an organ that is being attacked by an abnormal immune system. I have read that it can be caused by an infection that the immune system fights off and starts to attack the thyroid too. I am holding off having RAI for as long as I can despite a doc trying to "bully" me into having it . A few years ago ( over 20 ) I had ulcerative colitis that was put down to my immune system and told was a chronic condition I would have all my life .Not had a repeat of this condition up to now. The point I am trying to make is that I could have been put on medication for those twenty years as it is I have not had to take any. It may just be that my immune system is doing the same thing to my thyroid now so do I really want to take the drastic action of killing/removing it? . Am on 5mg of carbimazole at the moment and go back to docs in three months . I hope my thyroid is back to normal then I really don't want RAI . So glad this forum exists where we can voice our thoughts and worries as docs just don't seem to listen . Good luck to you all .

  • Posted

    I was diagnosed with Graves' disease by an eye specialist. The first endo I had encouraged RAI. I refused. A few months later a warning came out that RAI was not to be used for those with Graves' eye disease, because the eyes typically get worse after RAI. I'm glad I didn't get it. Now, I'm just waiting for the next great breakthrough. Maybe it will be the Carnitine thing.
  • Posted

    I have been out of work for 24 weeks. I have been in the hospital 8 times. I have Graves Disease and it went on for 10 weeks before I was diagnosed. I went into thyroid storm. I vomited for 14 weeks straight. I was too far gone for radiation. But I did have to go on methazole to try to calm it down before surgery for bleeding out. I had my total thyroid removed four weeks ago. The nausea and vomiting quit as soon as surgery was over. We are still trying to get my levels to straighten out. If I had to do it over again I would choose surgery to radiation any day. Now I am facing Graves Eye Syndrome. 

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