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Newbie to this horrible illness

Posted , 5 users are following.

louise0508
louise0508

I was diagnosed with an overactive thyroid just 3 days ago and have been put on 20mg of Carbimazole and I feel TERRIBLE so seeing this forum is a great help.

I'm going from wanting to paint the whole house at midnight due to being completely hyper to just wanting to sleep. I wasn't feeling this bad before I was taking the tablets.

My appointment to see the specialist won't be for atleast another two weeks. Should I come off them and wait to see him? It's really getting me down. Thanks.

1 like, 7 replies

7 Replies

  • catherine54047
    catherine54047 louise0508

    Posted

    Hi Louise. I'm just coming out of the over active thyroid syndrome and if I could give you any advice it would be to take your tablets as advised. The potential complications of not adequately treating this disease are worse than what you're going through at present. It will take a certain amount of time to get dosages just right for you but believe me, your symptoms  will calm down. A horrible experience absolutely, but very treatable.  Best of luck. 
    • Lesley333
      Lesley333 catherine54047

      Posted

      Hi Catherine

      glad to hear you are coming out of the over active syndrome.

      I was diagnosed last November with graves and graves orbitopathy. ( plus very severe photosensitivity. 

      After 3 months on very high doses of steroids plus carbimazole am now awaiting thyroidectomy and taking 10 carbimazole per day.

      Am feeling so dreadful on Carbimazole cannot wait to come off it.

      what is you story?

       

  • louise0508
    louise0508

    Posted

    Thank you Catherine. And I'm so pleased to hear that you can come out of it. I thought I had IBS so it was a shock to be told I have this, get put on Carbimazole right away and start to feel just dreadful. I'm normally an active working mum of three, but I can't focus on much now.  I guess I will just have to wait to see the specialist and take it from there.  Sorry to hear the severity of your condition Lesley. That's got to be very tough to cope with.
    • Deb1959
      Deb1959 louise0508

      Posted

      Hi Louise, I also just started my Carbimozole yesterday and I am feeling awful. Nausea and my legs are just aching, hope it improves as I wont be taking them.
    • louise0508
      louise0508 Deb1959

      Posted

      Hi Deb.  I've been on them a week now and actually feeling worse. Yesterday I had three bouts of feeling hyper, it was horrible and I keep getting told to ride them out and it will take at least a month for the body to get used to them but I am back at the docs next week if the symptons don't calm down as I 've already had enough.  AND, I still am waiting for the specialist appointment to come through.  I hope it improves for you too.  Just keep thinking as I do, once they balance the medication, you will feel back to normal.  I can't WAIT for that !
    • ariadne43
      ariadne43 louise0508

      Posted

      hi louise, have your symptoms eased?  How long did you have to wait for your specialist appointment?  I feel left to struggle on my own with this horrible condition
  • rubyx1993
    rubyx1993 louise0508

    Posted

    Hiya, I was first diagnosed with an overactive thyroid when I was 16. I was put on carbimazole for 18 months - I rarely took the tablets but became euthryoid at the end of it. It unfortunatly came back in January and I'm 21 now, I was put on 60mg of carbimozole straight away because my T4 was over 100 and my T3 at 64. I had to wait 6 weeks to see a specialist which was a joke seen as how ill I was. However, you really do not want to stop taking this medication, miss a few days at the start and your thyroid levels will go straight back up. Without the medication there are risks like having a thyroid storm which can be fatal. 

    I didn't really experience any of the side effects of the carbimozole like you have commented, but my white blood cells did become very low on the high dose of the tablets. Seen as it's your first time I'd just persist with them and your body will adjust eventually. 

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