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Newbie with question

Posted , 10 users are following.

Trikky987
Trikky987

Hi, Drs are hopeless, so I was hoping to get your opinion. I was diagnosed with Meniere's a few weeks ago but now Dr says maybe Meniere's maybe not as I don't have new hearing loss. I have poor hearing anyway from damage because of years of infections. I don't have any sinus congestion. I have short episodes of vertigo which are usually followed by diarrhea. I have had tinnitus for as long as I can remember, decades! I have fullness in my head and it feels as though hands are cupped over my ears. The fullness in my head is usually constant but I might get a couple of hours break a week. Nausea comes and goes. I have noise sensitivity, and even hear things that aren't there but this doesn't happen a lot. Apart from tinnitus, other symptoms started a couple of months ago. I don't drive far now, only in my local area, which is quite small with not much traffic, as I'm too lightheaded. I also have ear pain in both ears and headache at the base of my skull from ear to ear which come and go. I also now become so sleepy that I have to nap during the day, which I never did before. My Dr said go home and it might settle down. What do you think, could it be Meniere's or not?

0 likes, 16 replies

16 Replies

  • donna16710
    donna16710 Trikky987

    Posted

    Hearing loss is usually the defining factor with MD. That being said, this does not rule out other issues that can happen with the ear/vestibular nerve. Further evaluation by an ENT/neurologist should be done.
  • eleftherio33095
    eleftherio33095 Trikky987

    Posted

    Can you give me the exact results of your audiogram?  At which frequencies is the hearing loss documented?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • Trikky987
      Trikky987 eleftherio33095

      Posted

      Thank you for replying, I have been looking for my last report but I can't find it. I remember it showed high frequency was very good but not so good with low frequency, in fact I now have a hearing aid for my left ear and was told that my right will eventually need one as well. Wish I could be more specific. Thanks

    • eleftherio33095
      eleftherio33095 Trikky987

      Posted

      The low frequency hearing loss is compatible with Meniere's disease.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

  • jane51474
    jane51474 Trikky987

    Posted

    It seems you need another evaluation by an ENT to help you manage this!(not ALL are useless LOL😉wink

    • jane51474
      jane51474

      Posted

      And you should get another copy of your audiogram from your audiologist!
    • jane51474
      jane51474

      Posted

      I'm not a dr.but I feel a brain MRI and CT scan temporal bones and sinuses would be indicated .

  • Scnewhomes
    Scnewhomes Trikky987

    Posted

    I agree, have an MRI done to rule out anything else. Some of your symptoms do not sound like Meneires.
  • arax19947
    arax19947 Trikky987

    Posted

    I also agree with couple of other responses from others, suggesting an MRI of head and neck just to rule out unusal happenings. And if that comes out clean, then you will join the reat of the Menier's crowd by reading, researching, taking doctor's prescriptions with a grain of salt and being your own advocate to help heal some of your symptoms. Most of us agree that stress is one of the biggest cause of bouts or attacks of vertigo/dizziness in our experience. This said, we are all different and you will have to find a way for more relaxation in your life. Take care! 

  • Tunsc1963
    Tunsc1963 Trikky987

    Posted

    Hi,

    It sounds like you have a number of the symptoms to qualify as suffering from Meniere's. The 3 mains one are loss of hearing, tinnitus and dizziness.

    I get other symptoms: - Nausea, Diarrhea, and a couple of others, there are 10 symptoms in total. Many people have fullness in their ear?

    You need to get your Doctor to refer you to a specialist asap so you can get medication. Don't let them fob you off, they don’t have to live with this condition and have no idea how debilitating it can be. It takes months to get an appointment with a specialist.

    Reduce you intake of salt. I have and it has made a definite difference, keep yourself well hydrated. I am looking into taking vitamins at the moment especially Vitamin B6 known to be an anti dizziness and Nausea powers. 

    Good luck keep in touch 

  • ray02954
    ray02954 Trikky987

    Posted

    Hi, I have many of your symptoms if not so severe, i'm no Doctor but sounds like Menieres to me

  • liz11458
    liz11458 Trikky987

    Posted

    So good a doctor that actually cares about us to give advice eleftherio33095 thank you from all of us on here. Wish more doctors would help. Your advice has been so helpful. Tricky 987 hope he has helped you.
  • Trikky987
    Trikky987

    Posted

    Hi everyone and thank you, especially eleftherio33095 for taking the time to reply and sorry for the dr dig, I was feeling frustrated and fobbed off at the time. I have had a CT scan and nothing showed. Dr said clear sinuses so probably not meniere's. I don't understand this reasoning. Dr doesn't want to do anything else yet. Thank you all again.

    • jane51474
      jane51474 Trikky987

      Posted

      This DOES NOT make sense at all actually if your sinuses are clear better chance it may be menieres !and they like to do MRI to rule out other things like acoustic neuroma.dont give up get another opinion
    • Trikky987
      Trikky987 jane51474

      Posted

      Yes, that's what I thought! Unfortunately there is only one other dr in my area and I do not like him at all. So I guess I just keep going back to doc each time symptoms strike, he will eventually get sick of that and will investigate further.

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