Newby - with severe throat problems

Try biotene mouth gel you can get this on perscription, you could also have thrush done the throat. Is you tongue coated at all? And yes my ears drive me mad with the constant itching. But, I take Claritin once a day and that helps a lot.

Regards,

Mandy

Welcome to our world! The first bit of advice i have is that you have to speak up when you see a doctor. Try to have a plan for treatment before you walk away. Questions like "What do we do now as far as relief for my symptoms?" "When should we follow up?" "Do you have some litature I can take with me today?" You must advocate for yourself...you are the only person who can. Start reading everything you can about SS and treatments for relief, mention possible treatments like Hydroxychloroquine. The more educated you are the more control you have over your treatment. I keep my eye drops and nose spray under my pillow. In the mornings if my eyes are dry I reach for them and drop a few drops in my eyes for relief. My mother puts a little mineral oil on a q-tip and gently rubs it around the outside of her ear not all the way in...I do the same with cortisone cream when I am desperate (small amount). There is no reason you should be "winging" SS on your own after a visit to a doctor. You may want to make another appt.with him... tell them it is for a treatment plan since you didn't get one last time and you are still experiencing problems. I hope you can find some relief, good luck!

Sally

Glad you found this site - I've found it helpful.

About that sore throat: when it gets so bad that we can barely force ourselves to swallow our saliva because of the pain in trying to swallow, it's time to rush back to the doctor. Keep in mind that normal people with those normal and copious amounts of saliva would've long since been to the doc. It can be thrush and or it could be an infection of the vocal cords.

Here in the States one doesn't need a scrip to buy biotene gel. Not every store carries it. I keep some by my bed. If my eyes were that bad regularly, I'd put a small dish with a little water and 2 cotton balls beside the bed also. Then put a damp or wet cotton ball on each eye for up to a minute and you should be able to get your eyes open. With your eyes getting this dry at night, it's a miracle you haven't awakened with a corneal abrasion. I got one when my eyes were no where near as dry as yours. There are some eye gels, too, for use at bed time. Syslane makes one. Since I read in bed I haven't tried these yet.

Personally, I resort to drugs to avoid these extremes of our symptoms. I use evoxac/civemeline and also put drops in my eyes throughout the day. Most of the other drugs make me hyper.

Aitarg

I to have had a permanent sore throat and dry mouth and that choking feeling I find like Mandy  biotene gel really good  I also use Biotene mouth wash which is alchohol free I got it from Amazone I haven't tried to see if it's on prescription.

I also have thrush in my mouth which I am on nystatin I have found the soreness and dryness of the throat and that choking feeling has got better since the treatment i had a white coated tounge not like normal thrush cottage cheese that wiped off this wouldn't budge it looks white red and cracked and patches of white here and there I do find the nystatin causes dryness but it's different dryness.

Try chewing sugar free gum  sugar free sweets sips of water sucking on small ice cubes is good avoid anything with alchohol as it drys the mouth more nystatin has alchohol in it in so you may just have to bear with it you can spit the treatment out my GP said.

As for itchy ears you could try a dab of olive oil that very natural your not alone you may feel like it but this is great site with so many lovely people sharing their ideas and problems hope you get tips from us all that can give you some relief .

Go back to your GP or phone out patient rhumatology if your in uk chase it up all the best Jakki x