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Newly diagnoised

Posted , 3 users are following.

Milly19
Milly19

Just newly diagnoised with fybromyalgia.took 2 yrs as I have complex back issues 9 surgeries,lots of nerve damage,pains all over but in last two yrs suffered loads of new pains...it's the tiredness and the horrendous pains that get me,despite having been like this for almost 17 yrs( due to back).this new fybromyalgia pain is awful as is the drain on the brain as I call it..any advice would be helpful .thankx

0 likes, 8 replies

8 Replies

  • lisa66185
    lisa66185 Milly19

    Posted

    Try ribose for fatigue. I take Corvelan. It can be bought on amazon. It helps me ALOT!
  • Milly19
    Milly19

    Posted

    What are they? 
    • lisa66185
      lisa66185 Milly19

      Posted

      It is a mineral based powder or chewable. Both are available. If you Google "corvelan" it will tell you all about it. It is made by Douglas Laboratories. My kinesiologist chiropractor likes natural medication and he prescribed it to me. Tried to stop taking it once and wow , for me it really makes a difference. So I've been on it ever since.
  • christine26761
    christine26761 Milly19

    Posted

    All i can suggest as far as persription medication is concerned.

    ..Amithriptilyne..worth a google, good sleep, blocks all the pain

    at the nerve ends to stop it from travelling throughout your body.takes a while to get the right dosage...ive been on it now 16 years and never had it increased and it helps emmensley with my

    other autoimmune conditions too. be bkessed Milly, have a lively day..😚😚

  • christine26761
    christine26761 Milly19

    Posted

    Ive been sent to the moderator😧i must stop putting too many

    full stops in my text..try Amithriptyline, google it, its amazing,

    Prescription only, ive been on it 16years now, no increase,.be

    blessed, have a lovely day😍

    • Milly19
      Milly19 christine26761

      Posted

      OMg...no not amatrilyne...I hate the stuff.due to all my back problems I already take 100mg fentalyn patch plus an extra 12 mg,I have diazepam,liquid morphine.naproxen and paracetamol.im in agony most days,limbs spasm.

      im so tired I just don't know what to do 

    • lisa66185
      lisa66185 Milly19

      Posted

      Corvelan really woaks great for the fatigue. I'm not on any over the counter meds. I hate them and try to stay with the more natural options.
    • christine26761
      christine26761 Milly19

      Posted

      Poor you, I guess its soooo right then, what works for one,

      certainly doesnt work forthe other..it did take me months to get my dose right..i was either a zombie or it didnt work at all but i

      found that taking it at 6pm every night, was the go for me, probably ither too..lots seem to take it for fbromyalgia , gotta say

      though i really felt like chucking it in, but the perseverance finally paid off..hope you find something that works well for you Millie, very soon too, really feeling for you. Its very hard when we have a few other health issues to deal with. Im just sooo grateful that

      Amitrip works well for all my issues..have a lovely day..be

      blessed Milly😚

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