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Newly diagnosed :(

Posted , 5 users are following.

Ripley_08547
Ripley_08547

Hi, I have just been diagnosed after a 2 and a half year struggle with doctors for an answer. After a lot of pills, potions and tests. I've been informed this is my life now and it will get worse. Thanks docs.

I have heard of so many different symptoms to have, is there anyone out there in the same boat. New and feeling lost sad

1 like, 6 replies

6 Replies

  • Ellie1943
    Ellie1943 Ripley_08547

    Posted

    Hi Michelle. Just keep coming on here and reading what's said on the forums. Nothing worse than chronic pain but if you listen to the regulars you will pick up some tips on how others cope. I don't have fibro as far as I know but am treated for chronic Arthritis pain which is 24/7 also. sad  Best wishes Ellie X
  • LUBYLOO
    LUBYLOO Ripley_08547

    Posted

    Hi Michelle , I have had Fibromyalgia for near on 15 years , yes it could get worse but it could also stay at a lower level , he hasnt a crystal ball , each person is different,  been a shock to you to be diagnosed , but you will learn to cope , and know what you can and cannot do , and importantly pace youself in your daily routine , know when to stop , easier said than done when everyone wants a piece of you , but chatting about it does help .

    Take care  x

    • Ripley_08547
      Ripley_08547 LUBYLOO

      Posted

      Think it is a case with doctors they don't fully understand the condition so basically tell people to just get on with it. Thank you for replying
  • sadie1980
    sadie1980 Ripley_08547

    Posted

    Me ! I'm 34 and I've had it bad for 14 months but think I've had it for longer I'll paste my symptoms in for you

    symptoms

    Stiffness

    Tired all time even after sleep

    Pain if get poked

    Hate loud noise

    Puff eyes

    A stone put on

    Confused can't get words out/ can't count

    Headache

    Numb legs

    Rib pain

    Bk pain shoulder neck

    Spine stiff and hurts

    Hands worst

    Cramp

    Wrist and ankles

    Jaw

    Clicking and grinding joints

    Hands shaking

    Twitching in body / right eye twitch for days

    Bone pain everywhere

    Loose voice when I've done to much and run down and can't move

    Shooting pain threw bum into bk of leg

    Ibs hard then very loose

    No appetite

    Migraines

    I'm on meds to x

    • Ripley_08547
      Ripley_08547 sadie1980

      Posted

      Omg Sadie, I have exactly the same symptoms except I get really hot and have suffered a sore throat.

      I'm sure I have had it longer but a bout of shingles really set it off.

      All kinds of pain killers here but after seeing a specialist he put me on tapentatol 150mg per day, they seem to help more than Tramadol.

      I hope your feeling well today x

  • christine26761
    christine26761 Ripley_08547

    Posted

    Welcome  to Fibro Michelle, I've had it 39 odd years now.the symptoms are sooooo varied...there are so many of them too....it took 20 years of he'll before I was diagnosed.....I never ever want to go back there...it does get better however..it goes into a remission...my experiences that is... I only  get flare  ups now.,,bad ones too...but there is light at the end if your tunnel, be blessed Michelle,have a lovely day..hooe you get some relief and answers really soon. I know you will be helped on this blog, there are sooo many experiences to learn from..:-) xxx
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