Newly Diagnosed

You are not alone, join a few groups as they xan be good sources of support. 

As you should have been told, no known cure exists, you cant just take a pill and its gone. Saying that, I have met and spoken to many who have recovered to almost near 100 percent. 

With soo many recovering methods, you need to think carefully about what may be suitable for you. I have always said to people I meet that you need to attack the illness in two ways, the emotional and physical. 

There is a very good change you will almost certainly return to normality, just keep focusing on that and stay positive....

Hi Jkay,

Yes, people do recover, so don't give up hope. If you have a diagnosis, at least it will let you research more about the illness, and look for support groups. The situation is much better now than a few years back, I think, now it is recognised as a neurological condition and the NHS has much more specialist help available.

I work with someone who is in her thirties, very bright and bubbly and energetic, yet when I told her I thought I might have CFS she told me in confidence that she had got it so badly ten years ago that she had had to give up her job and flat and move back in with her parents. She said she still occasionally had a bad day when under the weather, but apart from that was fine. As Darren said, there are many paths to recovery - it is just a matter of finding the right one and having patience.

Hi Jkay1, From what I understand you can recover gradually. Give yourself  a good chance of that by pacing correctly and starting to build up with just stretches and strengthening exercises. You can find info on what kind of exercise can be detrimental to those of us with CFS/ME and what exercise is good to do here: http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf. (Read in stages as its quite long- second page is easier to read) I have had CFS/ME for 2 years- I didnt listen to anyone who told me to take it easy and pushed myself for this first year and now I'm worse. Also avoid at all costs the NHS's GET therapy. For contact with others with CFS/M.E. there are lots of facebook CFS/M.E support Groups (if you're into facebook) x 

Hi JKAY  reading your post is like it is me and my own exeriences i only joined this the other day but it has helped me to know that there are others that feel the same and so at the very least you can share your thaughts and feelings without being judged  

I  was diagnosed 2 years ago and it got so bad I had to give up a job that I loved, I was very bubbley and always up for a party but over time I have completely changed.

i can not handle lots of people so I spend all my time indoors and sleep for about 14 hours a day some times more, I do not go out on my own as in the beginning my memory was so bad I could not remember where I parked the car and felt so vunerable.

I have had CBT and can now get out if my husband is with me, I had the therapy over the phone as I did not want to sit in a room with strangers.

I find that if you pace your self life is easy know when to stop, I went to a wedding that went on all day so I went home an had a sleep and then went back, but the next week I spent in bed but that's the price you pay for having fun.

well saying that I have had a good week and sat in the garden and enjoyed the sun, so you will find what helps you and you will have good days.

If you do socialise just start with one friend and build it up as you get more comfortable.

Sorry to go on it it is nice to know there is people out there that has the same problem and are willing to listen.

Have a good day

Debs

Hi I was diagnosed in Jan, I am no way nearing recovered but am definatly on the way, I have documented my recovery on my blog.

I find activity management is the most important thing, I did a specific post about social activites, _____

Whilst there is no cure, the condition defintly can be managed until the symptoms become less and less and I know lots of people who have got back to a normal level of life, I find it is really important not to compare yourself to your old self

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