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Newly diagnosed

Posted , 5 users are following.

Scampi18
Scampi18

i have just been diagnosed with menieres, it all started in the bathroom, I was getting ready to take my dogs out for morning walk when mid tooth brushing I came over all hot legs went all tingly and I fell like a sack of potatoes onto the floor, I could not stand up the room was spinning my eyes were darting everywhere, very very frightened, tried to hold onto walls but just kept falling down, then uncontrollable crying I could not stop, some home I managed to get down stairs I don't know how and rang for an ambulance, everything was jumping and the vertigo and sweating and ringing in ears headache, ambulance arrived, said I was having a panic attack, was taken to hospital everything came back fine, was told a and e was for emergencies, I felt awful like I have wasted everyone's time, but I felt so ill, came home with no explanation, didn't get any better really dizzy ringing banging in ears headache feeling sick not eating went to my gp gave me some vertigo tablets, didn't work after a week went back different gp looked in my ears and could see fluid in my left ear, asked about symptoms told her and she diagnosed Ménière's, been on tablets for 3 days a little improvement but not a lot, third week of work, sick of being Unwell all the time, was diagnosed with autoimmune disease could the two be related, my normal gp not much help, does the Ménière's get better, do I need to see ent, loud noises also hurt, I get the odd day when I feel great then the next day awful is this normal, I know everyone is different but any help and guidance would be lovely. Thank you.

0 likes, 4 replies

4 Replies

  • jenniferlyminge
    jenniferlyminge Scampi18

    Posted

    I am so sorry this has happend to you,I have had it for 5 yrs now so know what you are going through.Stress is a big  part of the Meniers it makes it worse, if you can relax it will help .Your dk can give you a tablet to help the sickness  also keep taking the pills he has given you for the meniers they help with the full presure feeling in the ear.I find if I can sleep an attack off it helps day or night,This is a horrid thing to have and has no cure 
    • Scampi18
      Scampi18 jenniferlyminge

      Posted

      Thank you for the reply, was not the news I wanted to hear, I will just add it to everything else that I have, I have autoimmune disease so to add to it is awful, do you work, I had just set up a housekeeping business only been going a couple of months, been off for 3 weeks, my husband and I have just bought our first house after 20'years in the military, I am gutted, I am getting scared going out the house on my own, I don't go out in the dark, end up in the bushes. I am getting very bad sadness and cry a lot.  What to do next, I don't know. Anymore. 
  • Mcfrith
    Mcfrith Scampi18

    Posted

    Hi Scampi, I was diagnosed with Menieres 12 months ago after a few episodes over a few months. Some were quite small dizzy spells but one last September was so bad I ended up on the floor in the street with people walking passed me, obviously thinking I was drunk. It's odd because all of a sudden it seems like your mental state changes, and hearing seems 'odd' and even some noises seem to case you distress...it really feels sh*t...but...just try to think positive...you're not the only one suffering and remember...this will not kill you.  I've been taking Betahistine for about 8 months and although I have still had episodes (including another one that saw me being sent by ambulance to A&E) they seem to be happening less. So keep up with the medication and even though I know you will feel down and depressed and that you might also be suffering serious bouts of anxiety, do try to perserve. This 'thing' we have isn't likely to go away (although I do hope it does for you) but believe me that as you learn to get used to it (this sounds as impossible I know...but you will...I promise) it will over time ease off and you will learn to cope with it better. Anxiety is one of the big problems and it affected me in a bad way...I struggled going out, and got really withdrawn over a few months, but please do try hard (you'll need to be determined) and make sure you get out and about. Even taking a 10 minute walk will help. You won't feel like you can do it at first and you may be worried but after a few times you'll surprise yourself that 'you managed it' and it will help to build your confidence again.

     

  • tracy7777
    tracy7777 Scampi18

    Posted

    Sorry for.your Vertigo. I was.diagnosed.with Menieres Disease 3 yrs ago. I was.sent to a Ent who really didnt do much for me except give me  pills and told me theres really nothing else he could do. I now.see a new Ent , that  is.very attentive and has sent me for.a.balancce test which confirmed again tjat I have menieres, which is a.build.up of fluid in the middle ear.He wanted to Gentamicin

    shots in to my affected ear. (Too many side effects).so I started.doing research on surgeries for the menieres.and theres quite.a.few.My Dr.chose the labrinthectomy.  And it has an 95% sucess.rate.what.im getting at is dont beloeve that theres no cure.for menieres.there are. If ur not happy with your current Ent. Fimd a better one like what I  did

    Best of luck to y puy

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