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  3. Polymyalgia Rheumatica and GCA

Newly diagnosed

Posted , 5 users are following.

gabbybutton
gabbybutton

Hi my names Gabby and i've newly been diagnosed with PMR and according to my doc and research it seems its pretty rare for someone of my age (41) to get this... my main symtoms are pain ache and extreme fatugie in my arms back and hips and today my head feels to heavy for my neck...I was wondering if there was anyone else under the age of 60 here with this condition...my kids are already calling my the youngest pentioner in town...lol

0 likes, 4 replies

4 Replies

  • mrs_k
    mrs_k

    Posted

    gabbybutton

    visit www.pmr-gca-northeast.org.uk

    Will answer more fully later and no you are not too young and this was admitted yesterday at a Launch of PMR&GCAUK North East Support which was held in Newcastle.

    I was with a women yesterday who was 28.

  • EileenH
    EileenH

    Posted

    Hi Gabby!

    As MrsK says - definitely not too young! I was just over 51 when it first started good and proper but I'm fairly sure I've had it on and off since I was in my early 30s. Until the Newcastle launch on Wednesday I had thought it had been something else and coincidence that some of the symptoms were the same but two consultants admitted they are sure there are quite a few younger people who are not nedessarily being identified. The consultant rheumatologist I saw reckoned I was too young at 57 - nice thought about being too young but not acurate!

    How old are your children? I'd get a walking stick and threaten them with it if they keep being rotten to you!!! smile

    all the best and keep in touch now you've found us,

    Eileen

  • Koukla
    Koukla

    Posted

    Hi Gabby I too have recently been diagnosed with PMR a bit older than you at 51 unfortunately these things have no age boundries my husband was diagnosed with Parkinson's at 41 and at 53 is in a bad way with it. I thought it was bad enough looking after him now I have the 2 of us. However we do have a laugh about it, if we didn't we would cry, my son says we are the 2 youngest spakoes in town. fortunately since being on pred I now have no pain I just walk like a 90 year old until midday when I get going and looking after my grandchildren, 6 and 21 months is quite a task at times but life has to go on and there is always someone worse off so try to keep smiling it's amazing how a smile can get you through

    Kokla

  • Wallis
    Wallis

    Posted

    Hi Gabby, I was diagnosed at 51 by a rhuematologist. Have you been too? It is important to be referred if you are 'a-typical' as there are some other things out there with similar presenting symptons. A rheumy may want to run more tests and keep an eye on you. After a year my rheumy thinks it's [i:26f781b695]not[/i:26f781b695] pmr, but can't come up with another diagnosis. Plus it's on its way out which is good. He did blood tests looking for Lupus I know as that tied in with more of my symptons. Polymyositis was also ruled out thankfully.

    My gp says that when he was at med school pmr was the dumping ground for many inflammatory muscle complaints; that is changing I know, but I think at your age I would keep an open mind on it.

    I only took steroids for 3 months and have put up with pain ever since, but as I say it's slowing going thank God. It will be two years this August.

    Good luck x

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