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Newly diagnosed

Posted , 5 users are following.

Mazza44
Mazza44

Hello 😃 I was diagnosed with paroxysmal AF last week, I'm actually relieved to find out what has been plaguing me for a number of years, thought I was losing my mind. My AF is intermittent so wasn't always picked up on ECG.  I've been put on diltiazem and awaiting a pulmonary vein abalation.  Im just wondering of anyone else has had this procedure? 

1 like, 20 replies

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  • Dazzler
    Dazzler Mazza44

    Posted

    Hi

    I had this done in London 2 years ago this March, under general, through both groins, so far so good, did take a couple of weeks to settle down

    Occasionally I get an extra beat thrown in from the ventricle, but my consultant assures me its ok

    I also got a mobile ECG which goes on my IPhone and if I get stressed or Anxious I take a reading and mail to my consultant, although I think I can read the ECG myself now😄

    Good luck and I hope it does the trick

    • Mazza44
      Mazza44 Dazzler

      Posted

      Thanks dazzler, I've heard about these apps, they sound great
    • Dazzler
      Dazzler Mazza44

      Posted

      Hi, yes they are very settling

      BTW. I was 45 when I had nine performed

    • Dazzler
      Dazzler emma68890

      Posted

      Hi, I use AliveECG which works with the Alive Cor monitor, the latest download actually tells you if you are in or out of sinus, saves bothering the consultant

      Thanks

    • andrew22534
      andrew22534 Dazzler

      Posted

      Hi Dazzler, i do too and i use it to monitor my heart as a guide. I have found its recent update to be good.... but not perfect. I have Prinzmetal angina micro and macro spasms and intermittant arrythmia... i use it to determine trip to A&E or not and produce a monthly set of recordings for my GP to check over or send to the consultant.... I use it as part of that process only. I would suggest anyone else does the same and not to rely on it for all the answer, but by heck it does help!!!
  • Merryl
    Merryl Mazza44

    Posted

    Hi, was diagnosed about 2 months ago with Afib but had it for over 30 years. I was diagnosed after I phoned for an ambulance due to fast heart beats and it was picked up on ECG.  I was in the same hospital 5 months before that and stayed in for 10 days but it was'nt picked up then. I was told by the Dr that they try 2/3 different medications first and if they don't work they will try the ablation. i am also on blood thinners, are you on these?

    I am surprised they did not start you on meds first before the ablation. Have you been given a date for the operation?  The 2 meds I tried did not work so am now waiting to see the cardiologist about possible ablation. 

       

    • Mazza44
      Mazza44 Merryl

      Posted

      Hi merryl, I am on meds, I'm on diltiazem, he hasn't put me on thinners tho but I'm guessing that could be because my AF is intermittent? I'm just awaiting a referral at min. I'm only 45 maybe this is why they opt for the surgery? 
    • Merryl
      Merryl Mazza44

      Posted

      Hi, mine is intermittent too. When I was in the ambulance on the way to the hospital, the paramedic said I had quite a few attacks but I did'nt feel any of them. The one's I can feel are very uncomfortable though. 

      Hope all goes well for you! 

    • Mazza44
      Mazza44 Merryl

      Posted

      Thanks merryl, it is u comfortable isnt it sad
    • andrew22534
      andrew22534 Mazza44

      Posted

      just out of curiosity (please) where either of you fairly fit and active and have been so for a long time ie since at least late teens?I also have intermittant AF...
    • Mazza44
      Mazza44 andrew22534

      Posted

      Yes I was Andrew. I used to have a resting heartrate of an athlete app, always around 60 mark.  I started training as a nurse in 2010, three years of stress and bedlam really, then I got my first job in emergency care, same situation. Now I'm in a post that is mon-fri and fairly laid back this has kicked off again, it's really strange as I don't feel stressed at all. I would so love to go back to exercising but I'm scared to. 
    • Dazzler
      Dazzler andrew22534

      Posted

      Hi Andrew.

      At 40 I had a mild heart attach with a stent, family history seemed the same but was living a stressful life as a senior manager, still pretty stressful when AF occurred

      Since then got fitter, resting rate 58 and I belt the daylights out of a road bike

      I would say there's a corralation to stress (my personal view)

      Darren

    • andrew22534
      andrew22534 Dazzler

      Posted

      Hi Darren, yup that would do it from what i understand..... i was askingas my AF comes from being very fit... and now due ot other reasons i am not doing as much but my heart has high expectations and sometimes has a hissy fit accordingly. Stress is not good for the body espeacially when you are trying to sort things out one way and systems perhaps dont let you...leading to a build up of unresolvedness... Thank you! and good luck with the ongoing .....
    • andrew22534
      andrew22534 Mazza44

      Posted

      hmmmm my fit resting pulse was very low 40's high 30's as it was for Darren perhaps stress was the big event with fit heart second, how long did you keep very fit for? it does seem the heart get used to being pushed and then cant adapt to not being pushed. Perhaps gentle exercise would be worthwhile. Again i would check out with an exercise stress test to see but.... from my experience it does help, check first though! thank you...
    • Mazza44
      Mazza44 andrew22534

      Posted

      I was very fit for a good few years, I did bike riding, boxing (milder version for females lol), aerobics and yoga. Now I do nothing.  I am building myself up to starting some gentle bike riding again as I've heard exercise is actually the best thing for AF but as you know the palps tend to be off putting 
    • Mazza44
      Mazza44 andrew22534

      Posted

      Ps.... There is definitely something in what yr saying about body's expectations, couldn't agree more 
    • andrew22534
      andrew22534 Mazza44

      Posted

      Thank you and with regard to your previous post, some might say a sport is the ladies easier version... - no the sport is as challenging for that person body type etc etc so you were very fit and at the peak of your ability / capability. hmmmmm i would be inclined to say then that exercise would help and to a certain extent the more you can do the better? a few gentle rides to start with sounds a good plan! but dont get carried away - it is very easy to the oh this is fun again takes over very quickly - set a route and stick to it... and ENJOY, thank you for your response though interesting. GP is interested too as he says they hear it a lot and are aware of this phenomina and Prof Pearsons work with mice supports it experimentally wonder if a survey was done whether there woudl be the stres group the fit group and (sorry but ) others along with overlaps bit of a venn diagram.We will have to set up a cycling / walking club.... 
    • Dazzler
      Dazzler Mazza44

      Posted

      I remember when I first got diagnosed, and after, I was s*** scared to exercise, my consultant was pretty relaxed about it saying that it might aggravate it but that was all, try telling your head that...

      but as Andrew says they can stress test you on an exercise ECG 

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