Newly diagnosed

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Having had pneumonia in January , and 3 months later still not feeling well & after bi-weekly visits to the GP I finally got referred to hospital , where tests confirmed I have Bronchiectasis , was told initially was mild , but since having been referred to a chest specialist , have been told it's Moderate . Have had 2 sessions of physio , puts on carbocistene & nasonex. They also finally did sputum tests & discovered all the antibiotics I had previously taken were resistant to this bug ! Don't get me wrong I do feel better but still not right & have a constant cold feeling on left side , which no one seems to be able to explain . I also get dramatic temperature increases , at the height of it , it felt like my body was fighting against itself , one side hot the other cold ! Bizarre I know ...

now I have the constant cold sensation and occasional blasts of heat but oddly no raised temperature ? Anyone else getting this ? 

I am quite concerned abt the diagnosis , cannot stop thinking about it & until was diagnosed , had never heard of the condition !

am doing daily breathing excersises & huffs , but unless have an infection , not that productive . Also ,have been given emergency supply of antibiotics , the other day felt bit achy and cough started again within change in Color of sputum so I started taking antibiotics again ? Is this right ? I am terrified I will become immune to them , as it is I am Penicillin allergic !

any advice wil be very welcome . 

Thank you all in advance 

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5 Replies

  • Posted

    I was once told by an eminent professor that having bronchiectasis is a bit like having permanent low grade flu so you do get mild feverishness, joint pains, tiredness, upset stomachs as well as the symptoms you would expect like a cough or shortness of breath. I do experience hot and cold feelings sometimes but not so extreme as you describe.

    Don't be scared of bronchiectasis. It's not fun but once you've got the treatment stabilised and found out what suits you, you can live with it. Honest.

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  • Posted

    operalyn is right.I also get all the same symptoms she describes and the coldness you get I get it right in my midriff even when the temperatures are hot.I also only get mucus when I get a chest infection.Don't worry about the antibiotics if if did happen which is unlikely there are others.I also am sllergic to penicillin.Please don't worry as it is a livable condition,I also had never heard of ot when I was diagnosed.If anything changes and you feel worse please see your Dr again .Do you have a respatory nurse at your GP,I find mine is fantastic.Take care
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  • Posted

    I hae had it my whole life and I've lived it to the extreme.

    between the ages of 25-36 i saw a chinese medicine practioner. 

    He got me off 3 inhalers, 2 anti's and steroids

    I amnow 39 and for the last 3 years its been rough, mainly because my child brings home god knows what from daycare. 

    Stayaway from people with colds and flu.

    keep airway clearance up every day

    stay fit as  possible. 

    Have a siesta

    it is possible to live life as best you can. 

    Research your disease and own it. 

    Good luck

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