newly diagnosed

There are no ideas here. If you have published two novels and enjoy it. Could you not record your "writing" on a recorder and have some one type it from there. I understand the husband thing and the house work. Iwalk from point A to B thinking OMG and I just shake my head. He does everything , but Laundry which I can do. I can fold it and stack it and then the kids and hubby can put it away. I also try to do one small chore each day as this is part of my excersising and I try to make it noticable as I know that eventually at times my husband will be come frustrated with me sitting or laying there as he does everything. This gives him the visual that she did do ... Hope it gets better !

Hi shellybetts26 Family friends husbands try to understand, but they dont fully understand. The only people that do fully understand fibro are those that have it. What I do is sit with my laptop on my knee on the sofa, I have so long on the laptop half hour. Then I come off it have a rest then go back on it, I cant sit for 2 long in 1 position typing hurts my fingers. so what I surjest you do is if you go on the laptop. Just go on it for so long have a break go back on. where house work is concerned we have to pace ourselves. yesterday I could only manage dusting today 1 load of washing, just do what you can when you can. listen to what your body is telling you. because if we push ourselves fibro pushes back even harder. alot of us have had to finish work because of fibro, those that do still work struggle. I can understand you saying you feel useless thats how it makes us feel we didnt ask for this condition we dont want it its not our fault we have it. Just take 1 day at a time get through that day as best you can. could you use a dictaphone and get some one to do the typing for you.  Take care gentle hug 

Hi Shelly, 

You might have begun to notice that your really not alone with this. I. Have multiple health conditions all of which affect my mobility and capability to do things. Some days I can't get out of bed and other times I can do much more, just at a slower pace. My husband does everything around the house, occasionally I an cook. 

My advice is this. No one will be able to fully understand what fibro is, some will really try, others won't want to know and everything in between. It's a condition that deceives the observer because we look 'normal'. Try not to waste valuable energy on those that don't want to know. 

As for your writing, have you thought about using a programme that dictates what you say? There are some really good voice controlled programs available. 

Also little but often. Does it matter how long it takes to do something? Whatever you do break it up into smaller tasks and rest in between each stages. You'll still get satisfaction from doing the job, without feeling exhausted. 

Finally be kind to yourself!!! You know your limits. A physiotherapist once said to me, " when you think you have one more task in you, STOP!" She was absolutely right, I know because I tried to prove her wrong. 

Take care and gentle hugs xx

Hi Shellybetts.....

It's a shame your are having to give up your writing. Have you not considered a voice activated keyboard. You speak using headphones and the keyboard types for you.  I have one ordered for me for my workplace, as I do data entry and recently was diagnosed with Fibro, that a Access to Work was conducted at my workstation and the recommendations  that were given were a voice activated keyboard, sliding document holder and an ergonomic chair.  I am waiting for this to be delivered. I have alot of neck pains, shoulder and hand pains in order to carry out my daily duties at work. Maybe it is something that you can look into.

I have suffered pains for over 20yrs and only diagnosed in Aug 2014 with Fibro. Although family members can be sincere at times they can't see what we have to deal with each day, and how life can be taken for granted by many, it's only when one's life is affected it puts life into prospective.

You will find friendly and helpful advice from various people on this forum.  Without these wonderful people we would all be lonely.

Gentle hugs to you and hope you find the answers you are looking for, and do take care, try not to give up on your writing.  xx

Hi shellybetts.

I to had to give up work because of fibro. It takes a lot of getting used too as I was the breadwinner at the time.

For your writing I am sure there is a program that you can get for windows which you need to train to recognise your voice, but once this is done you just need to speak to the computer and it will type out what you say.

it could help, it may take longer to do but it would be an achievement at teh end of the day.

It is hard to pace ourselves as we have held hetic lives before fibro. I find it hard to not overdo things, especially on good days when you think you are invincible, but then pay for it for days after.

I hope that you can find some way to carry on your writing, but try not to stress about things as this will make your fibro worse.

Take care and gentle hugs

Thanks to all of you who took the time to reply to my post yesterday. You are all so kind and it certainly helps to know I'm not alone in this. All your advice is greatly appreciated. I am determined not to give up on my writing and will pace myself when I have the energy to do it. I find sitting in an armchair rather than at a desk is more comfortable for me. I'm not sure about the voice activated keyboard as my writing seems to come through my fingers - if that makes sense. But thanks for suggesting it. Today has been better and I've managed to potter in the garden with a bit of dead heading and watering. Sat out on my rocking seat watching the birds on their feeders. Have a good day everyone. Soft hugs to you all x