Newly diagnosed 5 yo with perthes diseas

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Hi there, I have a few concerns about my sons condition. Since been diagnosed with perthes two weeks ago my son has been barely able to walk. For me to integrate him back to school I've loaned a wheel chair as he can hobble around at home but at school he wouldn't keep up and I'm concerned about him over using the other leg.. I don't know if using a chair is the right thing to do, or shall I keep him at home? Or would he manage with crutches as he is only five. He's also walking on the bad leg on his toe rather than putting the foot down, is this going to cause further problems .... As you can tell this is totally new to me and I've had very little help besides diagnoses and general advice ...

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  • Posted

    Hi, I guess if you say your child has been diagnosed, then you will have seen a paediatric orthopaedic surgeon who has explained Perthes to you?  Wheelchair use for distance is fine, but your child needs to have phsio every day if you use a chair for any length of time, in order to keep his muscles and tendons supple.  If it's only two weeks then the inflammation will be whats causing the pain, you can uses paediatric paracetamol and paediatric Ibuprofen to help alleviate the pain and reduce the inflammation.  These can be given four hourly but best to give them alternately, you should be seeing the consultant regularly now.. hopefully you have another appointment ?  In the meantime keep the hip warm and avoid impact on the hip, like football and trampolines, or jumping from any height, otherwise treat him as normally as possible.  You can also contact us through our website via email so that we can send you more information. or call our helpline.
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  • Posted

    Hi, thank u for replying. Yes we have had x rays and seen the orthopedic specialist, more X-rays and second appointment in March. Being refered to physio. I will contact via email to receive some more info, I've read quite a lot already but still feel really uncertain and worried. Thank you for your advice smile 
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  • Posted

    Hi having gone through it with my daughter yeats ago your son is best not putting weight on his feet as it may take longer for it to get better my daugther was the first female child to have it in both hips she was confined to a wheelchair for nearly four years during that time she was in permenant plaster both legs with a bar to hold her legs for support
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    • Posted

      Hi thank you for replying, before our consult with orthopaedics I had read a lot and imagined them telling me he would need a brace, op ect but he was very relaxed and said that simply observation and rest when he's bad ..just really daunting ..today however has been the first day he can almost walk like a normal child... It lasted a few hours and was amazing, he's a little stiff now but still better than he was yesterday and the day before that.. Has your daughter fully recovered?  
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