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Hi everyone. I usually "hang out" on the Polymyalgia and Giant Cell Arteritis board, but was diagnosed with bronchiectasis early December. I've also since been told I have pseudomonas.
It looks like the bronchiectasis is caused by my compromised immune system, having been on high doses of prednisolone (steroids) for over 2 years with Giant Cell Arteritis. And having had several serious chest infections, including pneumonia in August.
I had a bronchoscopy early December because of a permanent dry cough, extreme tiredness and breathlessness.
I was put on Carbosisteine and turbo inhaler 200/6 and told that I would eventually see a physiotherapist, but that it would be a while due to waiting list.
Although they found the pseudomonas during the bronchoscopy, I was only told of it at my follow up appointment early January. I had spent the whole of December battling a chest infection, been given antibiotics by my GP and refused a second dose when I still felt ill, as she said I needed to save them for when I next had a really bad chest infection.
When I saw the respiratory consultant at the follow up, he asked how I'd been. I told him of the infection and he, almost gleefully, told me that the antibiotics prescribed would not have done anything to help, as the pseudomonas is resistant to most antibiotics. He then prescribed the correct ones. Of course I should have asked why I wasn't told immediately about the pseudomonas. It would have saved me a month of feeling so unwell, but at the time, I was too busy concentrating on what he was telling me and I also felt that he was rushing the consultation.
I hardly cough up any phlemgh. The inhaler has helped with my tight chest.
It's difficult for me to distinguish between feeling fatigued and generally unwell due to bronchiectasis/pseudomonas and my autoimmune illness of GCA.
Is the pseudomonas something that stays in your lungs and the antibiotics just dampen it down?
I'm due to have a spinal biopsy end of February and because it's a general anaesthetic, the doctor performing it wants to make sure I'm free of any chest infections. In fact, it was cancelled at the very last moment 10 days ago when they found out I had the infection.
It's all very new to me, so I would really appreciate any advice you can give me. Thank you.
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