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Newly diagnosed

Posted , 8 users are following.

anne52249
anne52249

Hi I'm newly diagnosed with this condition any tips or help on managing the smell itching and pain please 

0 likes, 13 replies

13 Replies

  • Valerie19955
    Valerie19955 anne52249

    Posted

    Hi, I am not an expert, my daughter has had HS for around 25 yrs, who diagnosed the condition, if it was a specialist he should be able to advise you, different things work for different people, it is trial and error, there is a lot of advice on this network from sufferers, including diets to try.
    • anne52249
      anne52249 Valerie19955

      Posted

      It was my dr , I'm sorry your daughter has had it so long it's an awful thing isn't it , I'm currently on a months course of antibiotics and hibiscub but it's down on My lady parts which is very painful thank you for the reply 

  • susan63067
    susan63067 anne52249

    Posted

    I'm not an expert on this because I'm rather new to this. I keep a plastic ziplock bag with cotton balls soaked in witch hazel with me to clean often. I'm trying dietary changes and discovered wheat products are triggering to me as well as milk... I'm working through process of figuring it out myself. Hot packs and ibuprofen are best for me to ease pain.

    • anne52249
      anne52249 susan63067

      Posted

      Thank you great tips there , my drs given me some hibiscrub any ideas on how to use that ?? 
    • susan63067
      susan63067 anne52249

      Posted

      I'm afraid I don't know how to use hibiscrub. I have super sensitive skin and I coat my skin with dr bronners lavender soap for about three minutes before I soak in a tub with Epsom. Then I use the witch hazel. I haven't even found any kind of adhesive bandage I can use that doesn't cause terrible irritation and cause it to spread.

    • anne52249
      anne52249 susan63067

      Posted

      I hate it , it's just awful I don't feel feminine at all and could get into a relationship as it's too bad , thanks I'll try a few things from here and see how they go.

  • britany82223
    britany82223 anne52249

    Posted

    Hello I was diagnosed with HS in 11th grade. I am now in my first year of college and I believe I have my HS under control. Like a lot of people I take turmeric capsules everyday to keep inflammation down, eat a vegetarian/vegan diet, and wash the area with antibacterial soap (Dial) and 10% benzoyl peroxide acne wash (PanOxyl). I believe the most beneficial thing (that I haven't seen anyone talk about) I do though is massaging the area with those two products. Seriously, I think that the rubbing and massaging of the skin, boils, scar tissue, etc. helps to keep the HS from flaring up, and if it does flare up, it helps it to heal much quicker than if I did not massage the area. I do this in the shower everyday with each product. I believe rubbing the area with any sort of lubrication you have in the shower helps wonders, from coconut oil to acne wash. I just want to reiterate again that this seriously has helped me so much and I just want everyone to know about it because this disease sucks so much. Massaging the area with a good amount of pressure and some product helps so much!!! Try it!!! Good luck!!!

    • anne52249
      anne52249 britany82223

      Posted

      Hi thank you for the comment.  I'll defo try some of your suggestions , I've seen a lot of people mentioning zinc , is this in supplements or how's that useful ? 

      Regards Anne 

    • Voidrunner
      Voidrunner anne52249

      Posted

      Hi Anne,

      I am using 70mg zinc gluconate and my HS is in remission. I used it for a year without any side-effect, I thought the HS was gone for good, stop taking the zinc and two weeks afterwards had a flare-up. that was 2 months ago, I immediately went on 3 x 70mg pills a day and after 2 weeks the boils dissapeared, I want down to 2 pills a day for another two weeks and this week I am again on 1 pill a day, they are very cheap and I found that when taking the zinc pills I can eat my triggers( potato, chillies, tabacco) without flare-ups....

    • anne52249
      anne52249 Voidrunner

      Posted

      Thank you 

      do you get them from your dr ? 

      Glad to hear they're working for you smile 

    • Voidrunner
      Voidrunner anne52249

      Posted

      Hi Anne, no, I buy them for 3$ for a 100 in any pharmacy, the milligrams sometimes vary, but I try to stay around 70 mg, and dont take the multi-vitamin stuff, you should be able to get a bottle with just zinc gluconate in it, or maybe zinc and vitamin d. Studies have been done with zinc and HS and results have been good. You are also in a very safe margin when taking 210 mg of zinc a day, the studies sometimes went over a 1000mg a day.
    • Voidrunner
      Voidrunner

      Posted

      Oh, and if you try them and they work, please come back here and tell the people, a lot of people use the zinc and forget to come back because their HS is no longer a problem.
    • anne52249
      anne52249 Voidrunner

      Posted

      That's great really appreciate the hint 

      I am trying a multi vitamin with zinc as I hadn't seen any on they're own but now I'll try those , oh ill definitely let anyone else know if they work believe me anthying that helps is really appreciated lol thanks 

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