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firstly can I ask if anyone is near me (Southampton Hampshire UK) it would be good to hear from you if you are
So a little about me , I have had a productive cough for a little over 2yrs during this time with recurrent chest infections , I do no smoke and never have incidently , I do have an under lining auto immune disease which I have had since 2005 (SLE & Sjogrens), I understand there is a possible predisposition to acquiring bronchiecatsis with SS??
I have recently had an admission to hospital , IV antibiotics, CT scan showed early onset bx , it's also been complicated by growing two funny bugs in my lungs and harder still that the antibiotics which could help I cannot take due to an allergic reaction last year (Steven-Johnsons Syndrome) :-( , it's been quite a journey this past 2yrs to reach a diagnosis
I don't know anyone else with this condition and understand it isn't very common?
I'm assuming that the tiredness, exhaustion, headaches , continuous coughing with or without productivity is the pattern? god isn't it just miserable :-(
I live alone and it has made doing so a bigger challenge these past yrs , I find I have more energy in the mornings rather than the rest of the day does it affect anyone else like this?
I do try and do the breathing excercises but currently just can't seem to get the hang of it
I was given an Acapella to try from the respiratory team am unsure if I'm doing that correct either
More Youtube watching me thinks !
Sharn (not mispelling)
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