Newly diagnosed
Posted , 5 users are following.
I'm a 47yo female who was diagnosed with LS about 4 wks ago. Been to the gp and gynae several times for painful sex to be told that my pelvic floor muscles are excessively tight and need to do PVM exercises to loosen. Also to go on HRT for dryness.. so around 10 years of putting up with pain from sex..poor hubby havnt had sex in around 18 months. Went to a new gynae who sent me immediately to another gynae who specializes in skin disorders of the vulva. From this I've learnt I have LS with vulvodynia. I have anatomy changes as well 
so I have no inner labial at all..that has completely fused to the outer.. and I have banding to the top and bottom of my vagina opening.. in one breath I'm over the moon with a diagnosis as I've had years of suffering, but on the other, why wasnt this diagnosed years ago to prevent any anatomy changes that now I may have to have surgery due to the opening becoming quite small.
1 like, 3 replies
eileen59440 donnak3756
Posted
similar problems to you - diagnosed with vaginal stenosis and just given exercises and dilators and left my own. so just getting a diagnosis isn't always the answer - it's treatment other than doing things by myself. this was years before ls diagnosis 18 months ago. age 74 (75 july 4th).
karen23320 donnak3756
Posted
I’ m right there with you Donna, 13 days sonce diagnosis. Have you watched Dr Goldstein’s webinar?
https://patient.info/forums/discuss/new-to-ls-start-here-297241 He talks about steroids helping to “ defuse parts” and discusses several surgical procedues that are possible - IF necessary. Steroids follow surgery to keep area un- fused.
susan43705 donnak3756
Posted
Hi, I feel for you. I have the same issue, painful sex for years and now fusing. I'm seeing my gyno this week to see what more can be done. I did buy graduating sizes of dialators (discretely delivered from a woman's site) that I bought years ago, but now it is too painful to try to stretch my skin. I hope you don't have to have surgery, and I am hoping the same thing for me.