Newly Diagnosed

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Can someone help me figure out what is going on with my lungs? After I was diagnosed the respirologist gave me azithromycin every second day for two months. After about 6 weeks the coughing went away (including the coughing at night). But when it ran out the coughing came back again. Awhile later my family doctor prescribed me azithromycin and the same thing happened, after 6 or 7 weeks the coughing stopped. Then the respirologist switched me to doxycycline and after a week on that the coughing started up again. So I just switched back to azithromycin. I guess I have a chronic infection that is only responsive to azithromycin? The thing is that the respirologist told me I can't stay on it, he said I might go antibiotic resistant. I can't stand the coughing at night, I am on day shift at work and never get enough sleep when I wake up coughing all the time. The respirologist said if I want to see him again in 6 months to get another referral from my doctor. I am going to try to get a referral to the Lung Centre in the city, maybe they can try to figure out what is going on.

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  • Posted

    I also just found out from a sputum test that I have haemophilus influenzae so I guess that's why my c reactive protein has been going up. the doxycyline should have been helping me then?

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    • Posted

      Hi, Im sorry I didn't see your other posts before I posted.  Carol66471

      s idea is a great one if you can get to that center.  

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  • Posted

    I recommend going to National Jewish Health in Denver.   They’re the experts, and the sooner you can get a handle on your disease, the better your chances of avoiding permanent damage to your lungs.  Best of luck to you.
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  • Posted

    Hello, I was wondering how you were diagnosed?  Did you get a CAT scan?  It can't be diagnosed by listening to your chest. This disease is of the bronchial tubes that bring the air to the lungs.  The tubes either by infection or birth defect get flabby and stretch so they can't efficiently push air into your lungs  I was given an antibiotic and was put on a nebulizer with albuterol sulfate inhalation solution 0.083 combined with Sodium Chloride inhalation solution USP3%. If you have an infection the nebulizer will help bring up the mucus that is in your lungs.  An antibiotic won't help if the stuff isn't coming out.  You definitely need to see a lung doctor/pulmanologist..  The way they are handling you makes no sense.  If you are a smoker, they may just be treating an underlying lung infection like pneumonia.....don't be concerned about being resistant right now.  You need to get rid of the infection no matter what it takes.  Did they try to take a sample of your sputum, something that you are coughing up?  That is how they will know what antibiotic is best.  Some of us have to be on low dose antibiotics all the time because we get infections all the time. If you smoke, you can't do it anymore.  You could also have COPD and  bronchaiectisis (will I ever be able to spell that word?) See a lung doctor immediately.  Your body is coughing because there is something wrong and your lungs need help.  These diseases don't go away, but you can get help to feel better. I hope you feel better soon.  Please post after you see a good lung dr.  

     

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    • Posted

      Hi yes I was diagnosed with a ct scan. My sputum test showed haemophilus influenza. My respirologist already said If i want to see him in 6 months I have to get another referral letter from my dr. 
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  • Posted

    Hi, I just wanted to say that I was coughing for YEARS and on constant antibiotics for bronchitis and pneumonia which I did have but the cough just went on. Finally I told my internist that I needed a referral to a lung doctor.  He did a CAT scan and showed me the dying bronchial tubes.  Why no one referred me is beyond me.  Every six weeks I was sick with infection.  This disease hasn't been known for very long but COPD has and I believe that is how they have found the one we have.  Please keep in touch and demand a referral!

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  • Posted

    This is my experience , hope it helps . I have had Bronchiectasis for years now and doctors don't want me on any more antibiotics but I am on Advair(an inhaler )  and Ventalin  an inhaler which is Albutrol Sulfate . These two really help me control the cough.I use them daily. You might want to ask your GP. 

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  • Posted

    I, too, was going to ask what inhalers you're on. Like Carol, i use Advair, which is a steroid & it's what controls my dry night cough. Because my lungs are so gunky, i do 3 nebulized meds several times daily & use 1200mg mucolytic twice daily. There are 40 or 50 inhalants on the market. There are also steroid tablets that can help with the cough.

    All of which is way beyond the vast majority of American primary care docs, don't know about Canadians. You need to be seeing a lung specialist at least twice yearly, more frequently in exacerbations. As to the Haemoph etc., i got nothin. What i just read on wiki sounds awful. Some doctor needs to be working on that diligently with you.

    I hope they get you squared away soon so that you will also be here tomorrow, love.

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    • Posted

      Hi - thanks for your reply. I was only given the Incruise  Ellipta inhaler. I don't know anything about mucolytic. I have a nebulizer but have only tried ventolin (salbutamol) and glutathione (from naturopath).

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  • Posted

    Dear here today. I too was given azii , before being diagnosed with bronchi x , and told it was to prevent chest infections. I am still on them ,and no apparent side effects. I now use a FLUTTER and even if no mucus is removed my breathing is much better and no coughing.

    Hope this helps.

    Sincerely, Graham.23402

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